My journey - battling lymphoma

Recently I celebrated my 46th birthday. I love celebrating birthdays! Then I participated as a co-captain for our local "Quabog" Relay For Life and the Pack 57 Rocks! Cub Scout Team. This was the time frame that I had discovered an uneasiness in my stomach and growth in my spleen and stomach. After weeks of monitoring, my husband Steve took me to the doctor who felt the lumps and ordered a CT scan. The CT scan showed a massive area, my spleen enlarged to twice its size and an additional growth lower in my stomach. Next was the localized CT guided biopsy and subsequent PET scan. The biopsy showed positive for lymphoma and most likely Diffuse Large B-cell Lymphoma.

This is my online journal sharing my experience through battling this cancer that has abruptly entered my life for no apparent reason. The story is documented here if you want to start from the beginning, you can check the archives on the side bar.

As a top competitive master athlete this year winning my age group at the Marine Corps Marathon and placing 3rd in the New England Trail Running Championship I have been truly excited with my results of late and am a truly driven athlete. Driven by goals.... my goal right now.... to beat this "thing"!
Showing posts with label American Cancer Society. Show all posts
Showing posts with label American Cancer Society. Show all posts

Monday, October 15, 2012

Spreading the word of survivorship & Sharing HOPE

Sharing my story has really been a way for me to reach out to others and give hope to those that may be facing a cancer diagnosis and a way to connect with other survivors in sharing strength. When you open up and share your life, others can really be inspired to be strong, be strong as a caregiver, and know that there is hope. Working for the American Cancer Society - I know there is hope, there are cures to be found and better treatments every day. When I was diagnosed, I felt armed with all the right information and that is so critical for survival on so many different levels.

Here is a shortened version of my story I shared in San Francisco before leading the group in the opening lap of the McKesson hosted Corporate Relay on Justin Herman Plaza right by the Pier. There were more than 400 in attendance in the crowd.  It was a beautiful Relay and so many great people opened up to me and thanked me. It is pretty great when you can make an impact on so many in a short period of time.

Check out the photos below that were taken that day by me and my husband Steve.... :) Congratulations to all those survivors out there and the many participants recruited --It was an incredible experience for me to be out there sharing the HOPE.

 Let's FINISH this fight!

Tuesday, July 19, 2011

Almost Heaven


We had such an amazing vacation at Mt Hood last week.  10 glorious days of cool Oregon weather.  Waking up early to catch the chair at 7 am - the lifts close at 1 pm because it gets so warm.  It is a ski racing meca.  They salt the slopes each morning and hope that the clouds (fog) doesn't settle in because it limits visibility so much you can't ski.  We were "fogged" out on Tuesday.  One day off to visit the wineries and waterfalls in the region on Monday.  This is the first of my sharing of my fave photos from our trip.  

The mountain in the distance you can see directly from the "Magnificent Mile" (the mile long chair ride to the top of Mt Hood) is Mt Jefferson.  My zoom allowed me to get these amazing shots all week!  

The name of this one is "Almost Heaven".  I entered it in the MoreBirthdays art contest with the inspiration  of guiding cancer patients through every step of their journey.  It was 1 year ago today that I was diagnosed with cancer.  It was the beginning of July and we had reservations to go and participate in the Peak Performance Ski Racing Camp at Mt Hood.  We had to cancel those plans because of the fast growing cancer inside of me.  It was quite the journey - as this blog has shared my steps along the way.  The programs and guidance of the American Cancer Society kept me informed, helped me to advocate for my care, educated me whenever I had questions and bottom line made for the best experience that I could have in treatment of my cancer.   This and the all the people that were there for me whenever I needed them, the gifts, the cards, the love that I felt from all my family, friends and colleagues.   

Almost heaven --- after making it through CAT scans, PET scans, blood tests (they all sound small but are all so stressful - not knowing what is in store).  4 months of chemotherapy, needles, drugs, nausea, exhaustion, weight loss, losing my hair, my eyebrows, and feeling like total crap.  Wigs and my favorite pirate cap are some of my fun memories.  Speaking on stage about my journey to inspire others.... running.... racing... kicking it in whenever I could ..... running 2 marathons (and pretty fast if I say so myself!) --- the second one sans my spleen.  It all seems like a crazy dream right now with my curly brown hair coming in (not gray - yay!) and running a 19:56 5K to win 3rd place and a pair of sneakers at a local race in Springfield, MA.  

Then to finally make it to the top of that mountain - Mt. Hood.  To race GS, to ski the glacier with my family, to get through those slalom gates without getting smacked in the face and actually look pretty good! :)  This is another step in my journey to share the sweet feeling of the view from where I stand.  The glorious mountains of Oregon.  I am so happy to share these photos with you.   More than you can imagine......

Live each day
Love 
Look to the horizon 
See it 
and Feel 
Almost Heaven


View of Mt Jefferson from the top of Mt Hood

Sweet Shot Day


Please leave a comment if you stop by!

Friday, June 24, 2011

Quabog Relay For Life - Honorary Chair - Survivor Speaker - MY NOTES








 I am honored to be the Honorary Chair of the American Cancer Society Relay For Life of Quabog Valley in Belchertown, MA.  Here are my notes for my speech from last night.  :)


My COMMUNITY
Relay is about a community that takes up the fight - the fight against cancer.  
 
This is my community - and I want to thank you all for being here and taking up the fight, the fight against this terrible disease that affects so many and raising the dollars for the advancements in cancer research that make the treatments possible for so many like me to survive cancer.   

The FIGHT
I have been fighting for this disease as staff for the American Cancer Society for more than 15 years, but never knew what all this really meant until last year --- it was at this Relay --- I was taking photos of the teams, the survivor lap, the smiling faces of all of you walking the track -- fighting cancer in our community.  

I HAVE CANCER  
Then that next week that in Dr. Levheim's office just around the corner from here ---  she told us that it looks like I have cancer.  I was hearing those words "YOU HAVE CANCER".  We left the office armed with appointments, doctor recommendations, insurance follow up, and onward, fighting like so many stories I had heard from cancer survivors at Relay.  It was scary, no fun at all to say the least.  After going to Mass General for a specialist opinion and Cooley Dickinson for my PET scan we had a diagnosis and a plan.  We were going to fight this thing - stage 4 diffuse large B cell lymphoma - and the prognosis was good.  4 months of chemo, 3 trips to Boston - a nasty treatment of methatrexate….. Lost my hair, decided to go blonde, endured the drugs, the side effects making the most out of each and every day…. .    The PET scan in November showed something more and the docs said the best route was to remove my spleen.  If I don't need it - take it!   The whole thing really did slow me down mind you…. But I still ran the Chicago marathon in October (2/3 through treatment) and then Boston (6 weeks after spleen removal)…  looking back it sounds like a whirl wind!  My friends called me Wonder Woman and I have the photos of me in costume!

  
“No one can hold you back from doing all the things you want to do.  Just keep your goals in sight, listen to your body and take one day at a time.  Some days will be better than others, but every day is a blessing. - so make each day the best it can be. " 
  
  
CELEBRATE
Now - it hasn't been a year yet, but no cancer is showing on my latest scans
Time to celebrate life - I am here to celebrate with all of you...
Celebrate with my caregivers - my amazing sweet husband, my fun loving active 10 year old son, riding motorcycles with our son Stephen & Samantha now living in Boston
It IS all about HOPE... and once you have HOPE 
you can share HOPE and if you inspire others, they can in turn inspire you." 

Let's Relay!  

Tuesday, June 14, 2011

Mass Appeal - TV segment

I was recently asked to appear on Channel 22 Mass Appeal, a daytime show that highlights human interest stories and events.  We were promoting Relay For Life upcoming events for Hampshire County and Quabog Region.  I met Madelyn, who is the co-chair of the Northampton event in the waiting area.  It was pretty interesting meeting the highlighted events, promotions and watching the 3 stages set up as the cameras moved from one area to the other while the co-hosts bounced between stages.

Seth Stutman was our host that would be interviewing us and Ashley was the other host that was doing other pieces.  They were a cute pair -- funny, energetic and happy!  :)  Seth was hilarious and had a great sense of humor.  We played right along.  Soon it was our time to get in the couches and miked up near the end of the show.  Below I share the link / imbed the video for you to see.  I think it went well, and I look pretty good (my hair is getting longer - yay!)  Check it out!




Relay for Life in Western Mass: wwlp.com

A photo from the set where they were showing recipes raising money for Girl Scouts "Fork it Over"

 A great photo of Madelyn and I at the station :)


Friday, May 20, 2011

Castleton State College Magazine- Wonder Woman highlight!

Last spring I communicated with my alma mater Castleton State College on my recent challenge with my upcoming Boston marathon after my lymphoma diagnosis.  I sent them the same interview info I shared with the ACS and then to my surprise this week a friend alerted me to this amazing article featuring my story.  A wonderful piece that I am so thankful to share with all of you.  Brought tears to my eyes reading it and just feeling the support of so many of you all over and thankful for my family and friends once again!


Thursday, May 5, 2011

Boston Marathon Results!

Here it is...  the final results and to share with you the thank you note I sent to my donors... what a great marathon, a great focus for me during this crazy time in my life.  
Note:  On that Tuesday following the marathon on 4/19 there was an All Staff Briefing where they shared my "update" with the ACS staff nationwide.  I was honored as they share my story as inspiration and to show my Wonder Woman photo on screen and on the webcast.  I was in the air traveling to Salt Lake City for our annual family vacation at Snowbird and not able to see it live, but my friends shared the moment and the virtual cheers from across the country -- how cool is that!

My thank you note:

Thank you to all the ACS DetermiNation volunteers and staff too!  

This truly was my best experience for DNation!  I consider myself an "expert"!  :) 
The Dream Team was truly amazing with their participation and results!  
THANK YOU!
I had to share my results and experience in photos as it is truly a celebration of life for me to have these results after only 6 weeks after having my spleen removed and 5 months since my last chemo treatment.  :)  

"Focus on what makes you happy and strong, no matter what, live it, breathe on and you too will go beyond being a survivor!"
- Nancy E Cook


My Boston Marathon Results! 
(I looked these up for my thank you notes and had to share with all of you!) THANK YOU for your support of me during these past months of trials and tribulations! :)

9162 Cook, Nancy E 46 F Belchertown MA USA 
SPLITS: 
5k = 0:21:17
10k = 0:43:18
Half = 1:35:00
Overall pace = 0:08:02
Finish Time Official. = 3:30:27


98% finished that started the race - below is based on finishers 
Time Overall = 7797 out of 24338 = Top 32% of all finishers
Gender - 1447 = 10281 = Top 14% of all women
Division = 101 = 1611 = Top 6% in age 45-49
Top woman finisher in my age group was 2:51:02 and number 10 was 3:12:40
Definitely do-able times in my book for the future! :)


ACS DetermiNation
Boston is my #5 DetermiNation effort in less than 3 years !!
I raised $1933.80 for the American Cancer Society through the Boston Marathon effort and the amazing support of all my donors !!
The Dream Team (6 truly incredible athletes) raised $18,893.80 !!
19 marathon runners supported ACS DetermiNation at the Boston Marathon and raised $47,614.50 !!

Time for a new goals! :)
So incredibly happy with my results and the truly amazing efforts in the fight against cancer !!

What's next? Vermont 50 miler in October and NYC Marathon in November and what ever else comes before that! 

Life is good. :)

Tuesday, December 7, 2010

All Staff Briefing - My notes! :)

Thank you
It was a year ago that I stood on this stage to celebrate my 15th year with the acs and shook the hands of Dr sefrin and his cabinet - you may not recognize me cause I was a brunette.  Little did I know at that time what my year had in store.

You see, I am a top ranked master runner having competed in 25 marathons, that's 26.2 miles a pop... Including 4 ironman triathlons.  I placed 7th master in Boston and last year won my age group at Marine Corps marathon racing with 40K people around DC.  In my 40s I am in the best shape of my life.

I too love to celebrate my birthday but I didn't realize that impact until just after my 46th birthday in June.  It was around the same time as our local Relay where I am a team captain with our Cub Scouts that while running in training for the Chicago marathon I felt a lump in my stomach.  After feeling it grow my husband urged me to go to the doctor who ordered a cat scan and we waited days for the results.  I remember sitting in the doctors office when she told us "we think you have lymphoma"- what?  Cancer?  I could see the tears in my husbands eyes, and my ACS experience has shown me this could go many ways - so without hesitation we started to make some more appointments - I just wanted this thing gone.  

What felt like months was weeks of tests, waiting to get in to see the oncologist, more tests and working with the insurance to make sure it was all pre approved.  Once we had a diagnosis of diffuse large b cell lymphoma we needed to be sure that it was indeed the whole story.  Finally with approval of a local oncologist we were off to mass general to see a lymphoma specialist - dr barnes -a biopsy and more tests.  We then had the right diagnosis in hand and were able to get connected with a oncologist locally we liked - one that fit, one who we could trust, which so important.  Dr Mullally understood my drive as an athlete ... Because I was going to do the Chicago marathon, 2/3 of the way through my treatment even if I had to walk.

I realize this will be the toughest marathon of my life and just like a marathon I need a plan.  When I would share with my friends, family and colleagues - they would remark "are you kidding? You are the healthiest person know!". Like everyone I was in denial, but when I lost my hair it all became real... I am bald, I have cancer. See? (take off hair)

My plan?  Stay strong, be positive.  I needed a symbol of strength and Wonder Woman was a natural fit!  My sister made our costumes and my friend Cara was going to support me as Batgirl.  Here we go!  (put on cap and cape). Amazing what a costume can do to fuel your efforts!  

Mile 1-15 
Just like treatment, I was still strong, feeling fast enjoying all the conversations along the way sharing my story with all would listen.  Stay hydrated and pace yourself!

Mile 16-20
The tough need to get tougher -medical is key and you need to listen to your body.  Have hope, share hope along the way.  Halfway through treatment al the symptoms are starting to amplify.

Mile 21-24
They say at a marathon starts at mile 21, you may need to readjust your goal but keep that finish line in sight and don't give up!  Even though this may be the last visit to the doctor the accumulative effect of chemotherapy is more exhausting than ever.

Mile 25-26.2
Yes or no?  Choose your attitude, do your best, smile - you are a symbol of hope.
I remember the cheers from the city of Chicago rooting for wonder woman and batgirl all the way!  And I remember my tears of joy crossing that finish line.
I beat my goal and ran a 3 hr 57 min marathon thanks to the support of my loving husband and Batgirl (car and Steve stand up)

But recovery is a challenge, give your body and mind a break - rest is so important to getting back on the road.  

What's next?  I have some more tests and PET scan next week to see that my treatment was successful ...
And my 5th acs Determination marathon will be Boston in April with my 6 member ACS Dream Team in force!

Just remember that no one can hold you back from doing all the things you want to do.  Keep you goals in sight, take one day at a time, some days will be better than others, but every day is a blessing -so make each day the best it can be."  


_____________________________


Here is the photo "movie" that I put together for this event.  What was shared was 10 photos, but this gives you even better picture of the journey.  Enjoy.  





All Staff Briefing - Survivor Speaker

I recently was honored to be asked to be the American Cancer Society staff survivor speaker at our National All Staff briefing in Atlanta, Georgia.  I worked with Laurie Entriken from our national office Talent Strategy team and shared my blog and experience with her before getting to work on putting together a presentation for Friday, December 3.  Steve took the time off from work to fly down and support me - which truly thrilled me as he had not been to our National Home Office.  I was so proud to share our organization with him on the trip.  :)

It was a few reiterations, drafts and practices of the presentation in front of Steve that got me to the final.  I had not practiced a speech so much before the day as I am pretty good at "winging it" but it paid off.  :)
  There was about 200 people there in the audience and another 200 across the country tuning in to the All Staff Briefing and my speech at the end of the program.  Cara - aka: BatGirl came to see me speak that morning, taking time off from work as well --- (she is such a busy girl - it meant the world to have her there too!).

I felt pretty shaky, although listening to it now I can't feel the shakiness like I could on stage.  My mouth was so dry and it got worse through the presentation so next time I am going to drink a ton of water to prepare.... :)  I didn't have enough strength to open up that bottle of water, but that would have helped too.  : )

It has been great to look at all the pieces of my story that will make a difference to someone that will hear it and I think the marathon analogy was a good one.  I will also post my notes / speech  in a separate post for you to see as well.

Here is the presentation - enjoy!  Please leave a comment below and let me know what you think!  :)





I want to share the photos that were displayed as well - it took me going through 35 favorites to get to the 10 final pics to share as part of the slide show.  I referred to them through my presentation so they will be posted with my notes from the presentation.

Thanks for stopping by - I know it has been a while. 
I get my PET scan tomorrow and see the Doc on Friday - Wish me luck!  :)

N

Posting a link to my presentation at the New England Relay U from September --- now with 2 speaking engagements under my belt, I think I am getting better at sharing this personal experience!  :)
"Bald Appearance brings standing O at the NEDIV Relay U!"  

Saturday, October 9, 2010

Marking the Miles.... In Honor and In Memory

I have been fortunate to have 45 donors to date contribute to my American Cancer Society DetermiNation fundraising.  For the Boston marathon I had a list of people in memory and in honor and carried that list - naming a mile for each person -- the list came from my donors.  I have reached out to my donors asking them if they have anyone that they would like me to run in honor or in memory of and below is my list.  


Marking the miles with strength and love!
I will also be wearing my red cape and will have ribbons on the cape in memory & in honor of all these amazing people!  :)  This list will update as I receive names.....  :)  
In Memory
Mile 1 -  Louis Peck - my dad, he passed away after a heart attack at age 63. I miss my dad and find strength from his spirit and love!










Mile 2 -Charles N. Pilling Jr. and Irene M. Pilling.  They both died of Cancer.  Robin's father had Throat cancer and mother had ovarian, pancreatic and bone cancer. This is my great uncle & aunt (Robin Stoddard)  


Mile 3 - Sharon Popp - sister of Louise Popp & Robin Popp


Mile 4 - Mary Beth Reddell - my dear friend from American Airlines past away this June, she was a Hero of Hope and a true hero of mine as the American Airlines volunteer leader for more than 4 years.


Mile 5 - Kathy Doolan - cousin of Sandy McDonald who lost her battle this past February.


Mile 6 - Terry Zahn - Relay For Life Hall of Fame member.  The man who created the first Relay video and who truly had a vision for now the world's largest fundraising event supporting the mission of the American Cancer Society.  

Mile 7  - Nathaniel Kachadorian  - From on of my basketball players at WUHS - Kris Murner  - "He was good friend who gave me my first kiss and lost his battle at age 20.  His illness directly affected my studies in school where I majored in radiation oncology physics and interned at Norris Cotton at DHMC.  A patient interaction changed my career path-- where I realized how much I missed helping people directly--  and I walked away from a PhD acceptance at U of Wisconsin-Madison-- the top program in the country.  So I work with nursing schools now-- helping them ensure their students are achieving at the level they need to be in order to pass their boards. I never would have thought that this is what I would be doing- now.  I have visited with Nathaniel's parents over the years-- their musically gifted son was a treasure to me.  My oldest daughter, Sadie, shares his birthday...something not lost on any of us."  (Kris Murner)


Mile 18 - Jane Calvert's Mom


Mile 19 - Jeff Ross' Mom


Mile 21 - Jeanette's Mom & Dad (Douglas McKenna)




In Honor 
Mile 8 - MURIEL REDFERN & LOUIS REDFERN -Lynne's Dad had prostate cancer in 2002 but has been clear since the day before Derrick was born. Mom had lymphoma and continues to fight!  God bless You Everyday & may he guide you thru this marathon with his strength. I love you, Lynne


Mile 9 - Dario Quiles who is currently in treatmant for liver cancer, and Juanita Ocasio -hoping chemo will shrink tumor eoough to have surgery for breast cancer. (Sandy McDonald)

Mile 11 - Lynne Grazianno Morin - my dear friend who works for the Leukemia Lymphoma Society and I met when she worked at the American Cancer Society --- an amazing woman with an amazing story!  She helped me and has continued to be a support for me during this journey.  I credit her for recommending Dr. Sean Mullally - who is truly a god - send to me & my family!  


Mile 12 - Grampa Ray! 


Mile 13:  Pat Flynn


Mile 14: Phylecia Wilson


Mile 15: Lynne Peters


Mile 16: All the patients at the Dr Mullally & Rockwell oncology office


Mile 17 - Susan Silodor - my dear friend that I met more than 10 years ago working for the Colorado Division of the American Cancer Society.  She has been a true inspiration of strength to me.  An amazing cancer survivor!


Mile 20 - Bev Gross - A dear friend, volunteer I worked with in Colorado to bring Relay For Life to NorthWestern Colorado.  Amazing fighter and national volunteer turned staff person --- that keeps the fight alive!




Mile 22


Mile 23 - Betty Ma's Father


Mile 24 - Cara's Mom & Charlie's Mom !!!


Mile 25 - 26.2  - Me!   2010 Because I CAN!  






More to come!  :)




Thursday, October 7, 2010

Chicago Marathon - Here we come!

2 days  21 hours to go!  
Start time: 7:30 am
Date:  10-10-10  (Schuyler's birthday!)
Location:  Grant Park, Chicago IL


What?: 26.2 miles - a marathon - my 27th marathon

Why:  Because I can!  It hasn't been easy training or actually sticking to this goal after being diagnosed in July, with some doubters out there, people thinking I am pretty crazy (which I may be!) and just the struggles with having chemo all summer long and dealing with how to actually TRAIN for this marathon.  I signed up, was diagnosed with cancer, started treatment, figured out that I could still run and train long miles (although - believe me NOT easy miles...) and now the day has come!  The marathon will be the ultimate test of my will, my body and my DETERMINATION to live, to run and to complete this distance!  Yay!

For the American Cancer Society -- I have raised as of right now - $1809.60 - and our team (Judy & I - "Boston or Bust!) - has raised $3329.60!  I am thankful for my friend Judy for encouraging me to sign up for Chicago (before diagnosis) and for sticking with me as I continued the quest in training through treatment.  Her support of me has been unfailing throughout this and as a friend for more than 11 years now.  She has missed me at the national meetings, calls me almost every day to check in and make sure I am not down or stressed.  Laughs with me and cries with me too.  :)  There have been quite a few true friends that have really shown their light strong through this battle and she is truly one! :)  I love having a "team" in DetermiNation, because then it is not always all about you, but also as a team you can celebrate eachother's efforts.   And Judy has rocked this one!   I also love DetermiNation because it is a chance to make a difference in the fight against cancer and spread the good word of the work of the American Cancer Society.  As a participant and fundraiser and volunteer - it gives me such pride to support the organization that I work so hard every day to reach others and promote Relay For Life corporate involvement and the mission of what we do at the Society to fight this dreadful disease that I now have the experience first hand to say that with more meaning and MORE passion.    Photo above is one of Judy and I at the Applefest Half in NH when she came to visit in 2009.

You have read about the Dream Team in an earlier post --- well we are getting together on Saturday - which may be the only time I see Charlie because he is SO fast!  :)  David is bringing cake and Cara and I are going to be partners through this thing.....  BatGirl and Wonder Woman!  Yes - my sister made the costumes and they are awesome. All lycra, short skirts and insignia and the capes to match.  Can't wait to share photos with you all!  We are going to get the crowd's attention and are actually planning on bringing a camera for scenic shots!

Although a personal note - I am sharing Cara's response to me trying to get her off the hook from running with me the whole marathon (I really don't want to hold her back because she is SO fast and I will drag her down ....)


Cara Turano
 
September 30 at 3:35pm Report
You are fine! I keep up with you through FB and blog and I have been worried because you seem less vocal. Take your time and I know you are feeling crappy. I am SO glad that you don't have treatment next week - that will make this whole marathon thing a lot easier and you are tough enough to beat this nasty thing without something even nastier hurting you.

As for the race, I am completely disregarding that paragraph! Girl, I have paced other people all summer. I am just as ready to run a 3:30 as I am a 5:20 and I am going to race Huntsville in December. Nancy, Chicago is about giving Steve a 4 hour or so break and letting me be your rock. I figured we could sign autographs and maybe have a fan club when we cross the finish line. :) If we walk, or fly, or skip, or stroll, or cartwheel, you are stuck with me...congratulations to you!! I even bought an eye mask and Charlie is worried about me running in it. I am going with you every step, cowgirl, and I will carry whatever you need to get through 26.2 miles in my utility belt. Did you really think you could get rid of me that easily?? Psshhhhh....I refuse to hear it. I have to many things to tell you and learn from you. We start together and we finish together....PERIOD.

I love you too!! I cannot believe we get to reconvene in Chicago in a few short days...I am gonna be right here every step of the way through the cancer battle and the Chicago Marathon. It is who I am and it is what you deserve.

XO,
C



























Wow - that totally had me in tears when I read that note.  She is such an amazing  person and has sent me cards EVERY week.  I feel like we have been friends forever and I really only have spent time with her that one experience at the Boston marathon.  Yes - I do NOT have to have the Methatrexate treatment anymore, it was determined that there is not benefit from continuing that after meeting with the medical director at Baystate.  A HUGE RELIEF for me in readying myself for this marathon.  I feel so much better this week and the taper has been good for me to refuel and regenerate so I am in top/peak condition for a chemo ridden patient running a marathon.  :)
Whoo Hoo!


The Schedule: 
Friday:  5 PM direct flight to Chicago - staying at the Hilton Airport Hotel
Missing the ACS DetermiNation dinner

Saturday - ACS DetermiNation warm up run is at 6 am which is too early for us to get into town so I am missing that too.  I was bummed to get the schedule and see that all the events just didn't fit.
Expo - morning
Meet the Dream Team at the ACS DetermiNation booth at the Expo
LUNCH with the Dream Team!
Staying at the Palmer House on Saturday and Sunday so we will check in after lunch
Lay out clothes and get prepared for the marathon
Rest & relax
Dinner with my sweetie


Sunday:  
Early wake up - call Schuyler because it is his birthday!  He turns 9!
Meet Cara dressed in Wonder Woman costume.
Check clothing bag with bus
Find Elite B coral
Stretch and ready
7:30 am start - on your mark! get set! GO!
11:30 am finish --- I set my goal to qualify for Boston (even though I have qualified with my Boston 2010 time) - which for my age group is a 4:00 hr marathon.  I think it is do-able and with Cara's help and support - it is a slam dunk.  But of course I will listen to my body and slow when I need to and honestly will enjoy every mile of feeling alive, hearing the cheers, feeling the strength and just finishing this marathon will be enough for me.  :)


Steve will be on the course taking photos and meeting us at spots along the course.  We were here in 2007 and he was so wonderful to be there encouraging me, he knows the course and is ready! :)
Find Steve at the finish - go to the ACS DetermiNation tent - CELEBRATE!
Pizza Party for ACS DetermiNation - hope to be there after relaxation at the hotel.


Photos are from 2007 - last time I ran Chicago with a tiger tail and tiger ears in the "heat wave" when they "cancelled" the marathon. 2007 results: Chicago Marathon (3:26:13)- 896 overall - 128 female - 15th in age group


Monday - Recovery day -  10 am flight home!  :)
Tuesday - Blood tests and see Doc Mullally
Wednesday - Treatment
Thursday - Treatment
Friday  - Recovery day!

Thanks for stopping by -- stay tuned for more updates and photos from after the marathon.  IF you wish to track me here is a link and my race number is 4399.  Think of me, send me strength and power thoughts!  Please leave a comment if you stop by!  I read ALL comments and am thankful to all of you for your prayers, concern and love.

Tuesday, September 21, 2010

The Dream Team: Dreaming of a Cancer Free World & DETERMINED to make a difference




The Dream Team?  



Dreaming of a cancer free world and Determined to make a difference supporting the mission of the American Cancer Society in the fight against cancer and creating a world with MORE BIRTHDAYS!!
The Fearless Foursome?  
A group of 4 that connected and had such a great time pre-race at the Boston Marathon as part of the Boston DetermiNation efforts - For Cara, Charlie & David it was  their very first Boston marathon in addition to making a difference raising the dollars to support the mission of the American Cancer Society!  Here is the story of some amazing athletes that CARE...
This past spring I ran my 5th Boston Marathon and ran it as a ACS DetermiNation runner (our Charity Runner Program).  It was my 3rd time running for DetermiNation and I had raised a little more than $1000.  The best part of running is sharing my experiences and meeting new people.  I love to meet new friends where ever I run and this was the epitome of it all for me, combining my love for running with my passion in the fight against cancer!  We were picked up in the morning by an ACS van driven by a volunteer and all piled into the van --- DP Pittman was there (I had "bumped" into him on Twitter - and we were tweeting friends meeting for the first time).  Steve dropped me off and I introduced the crew and hopped in the van headed to Hopkinton that morning.  I got to chat with Charlie -- something about his pink hair just makes you want to chat with him and get to know him ---- obviously fighting cancer for a reason!  And Cara was there too -- but it wasn't until we unloaded from the bus had the group photo and chatted some more....  The four of us clicked and I gave the tour (being the repeat "customer" at the marathon is definitely a bonus.
 We took our photo by the "It all starts here" sign in Athlete's village and did a lot of people watching as we stretched and got ready to head to the corals.  Everyone at Boston is "seeded" according to their "qualifying" times.  So we all were in different spots for the start.  OFF goes the gun and we were headed to Boston.  It was so cool as a DetermiNation runner they had people at the finish to escort us to the Park Plaza hotel.  So after finishing this clinical study blood test I had volunteered for and then finding my NUMBER ONE fan - my sweet husband Steve.... we found a volunteer and go to the after "party" support.  :)  There we got to chat with Cara & DP some more - Charlie ran way too fast and wasn't around at the finish party.  
So - we all have connected even more through Facebook and now Daily Mile.  It truly has been a Dream Team --- we call ourselves the "Fearless Foursome" and all plan to return to Boston and run for DetermiNation once again next April.  Since my cancer diagnosis these four have truly virtually been there for me - with encouraging comments and notes and cards too!  Cara & I are planning to run in costume (Bat Girl & Wonder Woman respectively -- costumes made by my dear sister!) and we are planning a get together of the crew when we are in Chicago on 10/10/10 weekend!
Photo below:   Pancake Breakfast (note i am not in this photo - we missed it.  :( ))
Here is a little piece on each of these incredible runners!   And if I get to share my story in Atlanta, I hope that they will all be there in person!
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Cara Turano
aka: "Batgirl"
Age: 32
Home:  Atlanta, Georgia
Chicago #3157 (Elite B)
2010 Boston Marathon time:  3:18:09 / 7:34 min/mile
Marathons run to date: TBD
Marathon PR:  3:18:09  - Boston!
Favorite Running Quote: The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy.- Martin Luther King, Jr.

Hello?  Could running a marathon be more about challenge and controversy?  How about doing it while on chemo?  It is not how you stack up at the start, but your ability to harness the pain and use it to your advantage.  My actual favorite running quote is a quote of my own....You say 'you can't...' and all I hear is 'try harder.'
Goal for Chicago (4th marathon?)  Support Nancy!  Run fast! Have fun!
Special note:  Cara is "pacing" me as a support running in the Chicago marathon.  Although I will deter her if I run too slow for this speed demon!  :)  I am running dressed as Wonder Woman and she will be Batgirl.  My sister Laura is making our costumes!  Such a fun, smiley, happy girl --- you totally want to hang out with her!
Why DetermiNation? 

Simply said -Mama T
Photo:  Cara's Team in Boston!
Why DetermiNation....I sawa DP Turtle on TV and I knew Mama T would be in between chemo and radiation for her Stage 4 colon cancer. She is such a super supporter of me, I wanted to do something that would honor her. She is my hero (and so are you) and I was running Boston and it was the right thing to do. Mama T and Tom missed NYC when I qualified and that was a tough day because she was recovering from surgery. Boston was a celebration of accomplishments and life! I would not have had it any other way. :)
In Boston, I raised $7500 in just over 5 weeks.  It was inspiring for me and I was honored and so was Mama T.

Favorite Marathon Memory....My absolute favorite marathon memory is post NYC last November. I had a PR by 17 minutes and had qualified for Boston without my parents there, but an AMAZING support crew of extended family. I finally found that crew outside of Central Park and called my parents. Mama T was so proud and about 6 weeks from starting her second round of chemo. Her direct quote was "Well, we missed New York, but we will see you Boston. I don't care what my treatment schedule looks like...I WILL be there." I think she hung up after that...talk about determination! We Turano's are a clan....sorry Nancy, now you get ALL of US!

Goal for Chicago....6th marathon and to cross that finish line with Nancy who is on chemo, rock my Bat Girl outfit and maybe get a victory kiss from one Charlie Johnston...
What does Charlie say about Cara?
Charlie Johnston Since meeting in Boston, I have had the pleasure of getting to know Cara as a person and a runner. Her tenacity as a marathoner and DetermiNATION fundraiser is rivaled only by her charming personality and complete devotion to her family and friends. Along with Wonder Woman (Nancy) she is truly among the greatest heroes I've ever had the honor to know.

Charlie Johnston 
aka: The Flying Pink Bandit
Age 27
Home:  Sparks, Nevada
Chicago #1577 (Elite A)
Special note:  Charlie has been running for only 3 years!
2010 Boston Marathon time:  3:05:37
7:05 min/mile
Marathons run to date:  Chicago will be his 21st marathon! 
Favorite Running Quote: "All it takes is all you got." —Marc Davis.
Why Relay?  Why Determination? 
Cancer first came crashing into my life when my mother was diagnosed with breast cancer in 1993, I was 10. I got started volunteering for the ACS in high school through the Relay for Life and eventually captained teams and sat on Relay committees for six years. Boston 2010 was the first time I ran for DetermiNATION. With the help of family, friends, and co-workers we raised about $1,000. 
What does Cara say about Charlie?   Cara Turano "Wow! He dyes his hair pink and both Mama T and I think he is an amazing young man. Charlie is wonderful and smart and passionate about life. I am lucky to be a part of his life."
Goal for Chicago 10/10/10:  Fast!  Flat course!  PR?  Lots of marathons this year, so ANYTHING is possible!

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"DP" Dave Pittman - 
aka:  "The Turtle"
Age: 31
Home:  Chicago, IL
2010 Boston Marathon time: 3:31:54 - 8:05 min/mile pace
Marathons run to date: TBD
Marathon PR: – 3:28.42 – Bank of America Chicago Marathon, Oct. 11, 2009
ACS DetermiNation or Charity Runner marathons participated:  Boston 2010 and many more!


Favorite Running Quote: 
Maraton PR:  3:18:09
Why DetermiNation?  “Turtles against cancer” is a nod to the parable of the tortoise and the hare, which is a fitting analogy both for David’s running pace and for the ongoing fight against cancer. But that’s not all — “turtles” also refers to a tasty treat you can receive for supporting David. He became a DetermiNation athlete in 2003 as a way to honor his sister, who has fought off cancer since 1988. (Learn more about the story behind “Turtles Against Cancer.”) In 2004, he joined the volunteer committee that recruits, encourages and supports DetermiNation runners and triathletes throughout their training and races. Since he joined DetermiNation, he has raised more than $45,000 to help fight cancer.
Goal for Chicago 10/10/10:  Playing the stellar and much needed part of ACS DetermiNation volunteer and "Pitt Crew" for the Dream Team!   And YES there will be CAKE at the finish line!  :)  
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Nancy Cook 
aka:  "Wonder Woman"
Age: 46
Home:  Belchertown, MA
Chicago #4399 (Elite B)
2010 Boston Marathon time: 3:23:17 - 7:46 min/mile
Marathons run to date: 26
Marathon PR: – 3:05;59 Boston 2007 - 7th master
ACS DetermiNation marathons:  VCM 2009, Marine Corps 2009, Boston 2010 & Chicago 2010









Photo above:  Running  the last 3 miles of the Pack Monadnock Trail Race which is all UPHILL - the steepest I have ever run!

Favorite Running Quote:
 Always remember to keep your eyes forward, lift your feet up, and duck when you have to..... 
and if you fall... roll with it, stand up and do all you can to keep going, 
because no one is in a better place to help YOU than YOU. 
 - Nancy Cook - on trail running, cancer survivorship and life
Recent Highlighted results: 3rd master - USAT NE trail running championships - June 2010, 1st in age at the Marine Corps Marathon in November of 2009.
Maraton PR:  3:05:59
Why DetermiNation?  (NOTE:  I wrote this in Feb 2010)
The program is such a perfect fit for runners like myself --- sign up, make a committment to run and raise money by sharing your story of why you want to fight cancer.....  the online fundraising function is user friendly, the Boundless Fundraising tool on Facebook has been a great help and reminder for a soft outreach and the Training Peaks program has truly kept me on track with daily tips and reminders of the miles to run.  I recommend the program to anyone that wants to run a marathon, 1/2 marathon or event that DetermiNation is connected with nationwide.  Now with the Rock n Roll partnership where ACS will be highlighted - more people will become aware of the program and feel even more accomplishment when they cross that finish line --- to make a difference, create a world with more birthdays, and as I celebrate another birthday in June --- I will again be training, getting stronger and fighting cancer so that others may survive this terrible disease.  
Note on 9/2010: Who knew that I would personally get cancer and be fighting it myself -- I was the healthiest person I know.  And now glad I am a runner, knowing it helps me be strong, stay balanced, be healthy and continue to inspire others.  

This team has been amazing to get to know better in just 5 short months.... We will all be there in Boston - running for DetermiNation once again and continuing to inspire other runners, people who want to be active and just people who want to make a difference.  Cheers to some amazing, caring, accomplished runners sharing the good word nationwide. 


What does Nancy say about Cara & Charlie?  
They are a fun and crazy couple that I love to have energize my life!  They both have a sense of energy and humor that really fills the world with Hope & laughter & inspiration.  It is because of people like Cara, Charlie & David (and of course Judy too) that I have met and got to know through running that inspire me to be a better and faster me!  :)


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Special Mention to my dear friend and marathoner who is my team mate for ACS DetermiNation Chicago and my colleague with the National Relay Business Unit - and deserves a special shout out too!
Judy Reichling
aka:  The Energizer Bunny
Age: 50
Home:  Lawrenceville, GA
Chicago #21212
Need to get Judy on Daily Mile!
2009 Marine Corps Marathon Time : 4:54:28 - Top 56% in age
Marathons run to date: 6
ACS DetermiNation events:  2 (Marine Corps 2009 and Chicago 2010)
Marathon PR: – Grandma's Marathon - 4:46:48.

Chicago 10/10/10  will be my 7th Marathon... Disney 2, 2003 and 2004 , Chicago 2, 2005 and 2006 , Grandma's Marathon 1, 2004 , Marine Corp 1, 2009.     I am really 52 :-( .. an old fart!  Funny that you called me the Energizer Bunny.. that is what Tom always calls me... I am slow but just keep going and going and going... I run and raise money for Determination for the people that I love and some that I have lost.  In particular this year is for Jan, who fought a four year battle against cancer and for my dear friend Nancy who is amazing and fighting her own fight against cancer right now!  There are so many others .. Phylecia, Dick, Joy, my niece Laura...unfortunately way to long a list of the people that I care about.  I am passionate about my work with the American Cancer Society and about finally bringing an end to cancer!!!  My words of wisdom from just last weekend are "don't drink too much the night before and then try to run 20 miles in the Georgia heat"!! It was 85 degrees when I finished.. bleech!!  Running keeps me sane.  Running is my time to think, plan, relax, and enjoy friends (when running with others).   It is an addiction and I love it! 



In Summary - 
"Why DetermiNation?  Encouraging others to get active, stay active and keep the data in order to do the best they can do is a true strength.  DetermiNation allows the combination for raising funds for the American Cancer Society mission while setting the high goal of running a marathon and sharing that experience with others.  It is like forming your own cheering section in each marathon.  And all along feeling like a champion no matter what time you cross that line." 
- Nancy Cook, soon to be 4 time ACS DetermiNATION marathon athlete, mom, wife and currently undergoing treatment for Diffuse Large B Cell Lymphoma!  

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