My journey - battling lymphoma

Recently I celebrated my 46th birthday. I love celebrating birthdays! Then I participated as a co-captain for our local "Quabog" Relay For Life and the Pack 57 Rocks! Cub Scout Team. This was the time frame that I had discovered an uneasiness in my stomach and growth in my spleen and stomach. After weeks of monitoring, my husband Steve took me to the doctor who felt the lumps and ordered a CT scan. The CT scan showed a massive area, my spleen enlarged to twice its size and an additional growth lower in my stomach. Next was the localized CT guided biopsy and subsequent PET scan. The biopsy showed positive for lymphoma and most likely Diffuse Large B-cell Lymphoma.

This is my online journal sharing my experience through battling this cancer that has abruptly entered my life for no apparent reason. The story is documented here if you want to start from the beginning, you can check the archives on the side bar.

As a top competitive master athlete this year winning my age group at the Marine Corps Marathon and placing 3rd in the New England Trail Running Championship I have been truly excited with my results of late and am a truly driven athlete. Driven by goals.... my goal right now.... to beat this "thing"!

Monday, August 22, 2011

Yes I am a DetermiNator!

Recently I was asked to write about why I run and raise money for the American Cancer Society through the DetermiNation program.  As a crazy Relayer (a person dedicated to Relay For Life through work & volunteerism) --- my work with the ACS has me promoting the Relay experience on a daily basis - and yes I do bleed "purple" and drink the Kool Aid quite often.  It is "cult-like" to be in the Relay Family and it feels real good to meet others all over the world that are passionate about making a difference by raising the much needed funds to fight cancer, walking around the track, celebrating survivors, caregivers and the memory of those we may have lost.  Through my experiences at Relay and building this passion and it was about time that I share my passion of running with my passion for fighting cancer.  I knew about the Charity Runner program, and looked forward to seeing what I could accomplish by dedicating my marathons to a cause & organization that I believe in.




The American Cancer Society Charity Runner program began in Illinois and my friend / colleague Ann has spearheaded the efforts of promotion and building up the nationwide support of this avenue for raising funds to fight cancer through ACS.   I admire her energy and leadership to bring this forward to more events across the country.  It has been amazing to watch it grow!  Now with the name DetermiNation it truly hits home to the endurance runners everywhere that are out there DETERMINED to find a cure!  Look out --- ACS has now signed up one Determined lady! 


Because I am a crazy runner --- 4 Ironman triathlons and more than 20 marathons under my belt -- I had some great marathon finishes behind me before I transformed into a DetermiNator. :)


So you ask Why DetermiNation?
I love to run. 
I love to compete. 
I love setting goals and SMASHING them to pieces!  
I love marathons --- ok it can be quite draining and sometimes agonizing to have to dig so deep to push yourself for 26.2 miles, but the amazing endorphins you build up to carry you (AKA: Runner High) to the finish and the pride of wearing that finisher medal compares to nothing else.  
I love medals.  I love to win.  I love feeling like a crazy runner - when people don't understand you because you just can't stop running, training and sign up for yet another marathon.  


I love to make a difference.  I love to show others that being a strong athlete can also be a platform for advocating for better healthcare, better treatments, more research and tools for making a better quality of life for anyone who faces this disease.  


So after my 3rd DetermiNation marathon which happened to be Boston, I had signed up to do Chicago, again as a DetermiNator --- and was diagnosed with diffuse Large B Cell lymphoma.  And for some crazy reason - it just made me want to run more, show everyone that cancer would NOT beat me.  No way.... and on top of that I am going to bring more attention to the fact that I am fighting cancer, not only in my chemo treatments, but out there training for the Chicago marathon and raising the funds for the American Cancer Society.  It feels even more powerful to train as a cancer survivor - to show others the strength and determination it takes to be in the best shape and hit all my goals!  


Sharing the entire history below -- links to each story on my blog with each experience if you really want a good read.... :)


My first ACS DetermiNation event was VT City in Burlington Vermont - May 2009
Raised - $1340
3:19:59 - 216th overall place of 2119 competitors
21st woman - 4th in age



My second ACS DetermiNation event was Marine Corps Marathon in DC - November 2009
Newspaper article in the Republican about me in the MCM
Raised $1100
 3:16:07 
1st place in age - Master Woman


My third ACS DetermiNation event was the Boston Marathon - April 2010
Raised $1560

3:23:17- 7.46 min/mile
5291 overall - 712 woman - Overall- 41th master!  


My fourth ACS DetermiNation event was the Chicago Marathon - October 2010
Raised $1800
3:57;58 - 7807 overall of 36,088- 1974 woman of 16,142 and I was 135 in age
*NOTE - I was 2/3 of the way through my chemo treatments on 10/10/10


My fifth ACS DetermiNation event was the Boston Marathon - April 2011
Raised $1933.80
3:30:27 (8:02 min/mile) - 7816 overall of , 1445 woman of 10,074, 101 in age group out of 1597 in 45-49 age
*NOTE:  This marathon was 6 weeks after the removal of my spleen in order for a biopsy to be done in case of more cancer.
More Boston statistics 


My sixth ACS DetermiNation event will be the ing New York City Marathon - November 2011
Goal:  $1500  Currently raised: $852


Total (in less than 3 years!) = $8587.80  


Hope to hit the $10,000 mark soon!  PLEASE help me spread the word we can fight this disease!  Here is the link to my donation page for the ing NYCM with more of my story. 


 You can help me make my goal and you can make a difference too.  Thank you so much for reading my story of strength and DetermiNation.  As long as I am running marathons I will be a part of this DetermiNator team!



My Fundraising Tips?

1. Ask - if you don't ask they can't give
2. No could mean - not now - don't be afraid to ask again
3. Thank everyone that gives immediately - amazing the repeat donors when you treat them right!
4. Thank people publicly so others see it and may want to donate too!
5. Keep it up front and visible with the link everywhere so people know where to go to make a donation. 
6. Share your story - keep it real
7. Thank people even when they say no.
8. Communicate to everyone and keep them engaged in your training, your campaign to raise funds and to be connected to the efforts all around
9. Ask again! - count down your days till the big race and include how much money you have raised and how much to get to your goal.
10.  Celebrate with everyone that you touch through your outreach -- your completing the marathon or endurance event is something that they want to hear about and feel a special part of - so don't forget to share your results!






Above photo is of me at the Big Fourth in Springfield MA on July 4, 2011 -- I was 3rd woman overall and ran a PR 5K with a 19:56.  6:20 minutes per mile.  Very proud of myself that day! :)


Until we find a cure.

Tuesday, July 19, 2011

Almost Heaven


We had such an amazing vacation at Mt Hood last week.  10 glorious days of cool Oregon weather.  Waking up early to catch the chair at 7 am - the lifts close at 1 pm because it gets so warm.  It is a ski racing meca.  They salt the slopes each morning and hope that the clouds (fog) doesn't settle in because it limits visibility so much you can't ski.  We were "fogged" out on Tuesday.  One day off to visit the wineries and waterfalls in the region on Monday.  This is the first of my sharing of my fave photos from our trip.  

The mountain in the distance you can see directly from the "Magnificent Mile" (the mile long chair ride to the top of Mt Hood) is Mt Jefferson.  My zoom allowed me to get these amazing shots all week!  

The name of this one is "Almost Heaven".  I entered it in the MoreBirthdays art contest with the inspiration  of guiding cancer patients through every step of their journey.  It was 1 year ago today that I was diagnosed with cancer.  It was the beginning of July and we had reservations to go and participate in the Peak Performance Ski Racing Camp at Mt Hood.  We had to cancel those plans because of the fast growing cancer inside of me.  It was quite the journey - as this blog has shared my steps along the way.  The programs and guidance of the American Cancer Society kept me informed, helped me to advocate for my care, educated me whenever I had questions and bottom line made for the best experience that I could have in treatment of my cancer.   This and the all the people that were there for me whenever I needed them, the gifts, the cards, the love that I felt from all my family, friends and colleagues.   

Almost heaven --- after making it through CAT scans, PET scans, blood tests (they all sound small but are all so stressful - not knowing what is in store).  4 months of chemotherapy, needles, drugs, nausea, exhaustion, weight loss, losing my hair, my eyebrows, and feeling like total crap.  Wigs and my favorite pirate cap are some of my fun memories.  Speaking on stage about my journey to inspire others.... running.... racing... kicking it in whenever I could ..... running 2 marathons (and pretty fast if I say so myself!) --- the second one sans my spleen.  It all seems like a crazy dream right now with my curly brown hair coming in (not gray - yay!) and running a 19:56 5K to win 3rd place and a pair of sneakers at a local race in Springfield, MA.  

Then to finally make it to the top of that mountain - Mt. Hood.  To race GS, to ski the glacier with my family, to get through those slalom gates without getting smacked in the face and actually look pretty good! :)  This is another step in my journey to share the sweet feeling of the view from where I stand.  The glorious mountains of Oregon.  I am so happy to share these photos with you.   More than you can imagine......

Live each day
Love 
Look to the horizon 
See it 
and Feel 
Almost Heaven


View of Mt Jefferson from the top of Mt Hood

Sweet Shot Day


Please leave a comment if you stop by!

Friday, June 24, 2011

Quabog Relay For Life - Honorary Chair - Survivor Speaker - MY NOTES








 I am honored to be the Honorary Chair of the American Cancer Society Relay For Life of Quabog Valley in Belchertown, MA.  Here are my notes for my speech from last night.  :)


My COMMUNITY
Relay is about a community that takes up the fight - the fight against cancer.  
 
This is my community - and I want to thank you all for being here and taking up the fight, the fight against this terrible disease that affects so many and raising the dollars for the advancements in cancer research that make the treatments possible for so many like me to survive cancer.   

The FIGHT
I have been fighting for this disease as staff for the American Cancer Society for more than 15 years, but never knew what all this really meant until last year --- it was at this Relay --- I was taking photos of the teams, the survivor lap, the smiling faces of all of you walking the track -- fighting cancer in our community.  

I HAVE CANCER  
Then that next week that in Dr. Levheim's office just around the corner from here ---  she told us that it looks like I have cancer.  I was hearing those words "YOU HAVE CANCER".  We left the office armed with appointments, doctor recommendations, insurance follow up, and onward, fighting like so many stories I had heard from cancer survivors at Relay.  It was scary, no fun at all to say the least.  After going to Mass General for a specialist opinion and Cooley Dickinson for my PET scan we had a diagnosis and a plan.  We were going to fight this thing - stage 4 diffuse large B cell lymphoma - and the prognosis was good.  4 months of chemo, 3 trips to Boston - a nasty treatment of methatrexate….. Lost my hair, decided to go blonde, endured the drugs, the side effects making the most out of each and every day…. .    The PET scan in November showed something more and the docs said the best route was to remove my spleen.  If I don't need it - take it!   The whole thing really did slow me down mind you…. But I still ran the Chicago marathon in October (2/3 through treatment) and then Boston (6 weeks after spleen removal)…  looking back it sounds like a whirl wind!  My friends called me Wonder Woman and I have the photos of me in costume!

  
“No one can hold you back from doing all the things you want to do.  Just keep your goals in sight, listen to your body and take one day at a time.  Some days will be better than others, but every day is a blessing. - so make each day the best it can be. " 
  
  
CELEBRATE
Now - it hasn't been a year yet, but no cancer is showing on my latest scans
Time to celebrate life - I am here to celebrate with all of you...
Celebrate with my caregivers - my amazing sweet husband, my fun loving active 10 year old son, riding motorcycles with our son Stephen & Samantha now living in Boston
It IS all about HOPE... and once you have HOPE 
you can share HOPE and if you inspire others, they can in turn inspire you." 

Let's Relay!  

Tuesday, June 14, 2011

Mass Appeal - TV segment

I was recently asked to appear on Channel 22 Mass Appeal, a daytime show that highlights human interest stories and events.  We were promoting Relay For Life upcoming events for Hampshire County and Quabog Region.  I met Madelyn, who is the co-chair of the Northampton event in the waiting area.  It was pretty interesting meeting the highlighted events, promotions and watching the 3 stages set up as the cameras moved from one area to the other while the co-hosts bounced between stages.

Seth Stutman was our host that would be interviewing us and Ashley was the other host that was doing other pieces.  They were a cute pair -- funny, energetic and happy!  :)  Seth was hilarious and had a great sense of humor.  We played right along.  Soon it was our time to get in the couches and miked up near the end of the show.  Below I share the link / imbed the video for you to see.  I think it went well, and I look pretty good (my hair is getting longer - yay!)  Check it out!




Relay for Life in Western Mass: wwlp.com

A photo from the set where they were showing recipes raising money for Girl Scouts "Fork it Over"

 A great photo of Madelyn and I at the station :)


Friday, May 20, 2011

Castleton State College Magazine- Wonder Woman highlight!

Last spring I communicated with my alma mater Castleton State College on my recent challenge with my upcoming Boston marathon after my lymphoma diagnosis.  I sent them the same interview info I shared with the ACS and then to my surprise this week a friend alerted me to this amazing article featuring my story.  A wonderful piece that I am so thankful to share with all of you.  Brought tears to my eyes reading it and just feeling the support of so many of you all over and thankful for my family and friends once again!


Friday, May 13, 2011

"HOPE" for Relay For Life Fight Back Ceremony

I wrote this for a Relay that I could not appear in person.  They asked me to write my story in order to present it at their "Fight Back" Ceremony.  I wrote it in 3rd person.  Hope you like it.     :) Please leave a message if you stop by! 







Hope.

It IS all about HOPE... and once you have HOPE 
you can share HOPE and if you inspire others, they can in turn inspire you."

  These words are from a woman in Western Mass, a woman that I heard speak last fall when she was in the middle of treatment for Stage 4 diffuse large Bcell lymphoma.  Her words rang loud and clear for all of us in the room at this special Relay For Life Summit. 
She shared her experience of hearing those words… “you have cancer” She shared the experience of her treatment, her fantastic doctors & nurses She shared how she finds strength, in people like you and me, people that Relay, people that care enough to fight back against cancer and support the mission of the American Cancer Society.   

We support our cancer survivors in our community.
This woman, Nancy, in the fall she ran the Chicago marathon 2/3 of the way through treatment in a Wonder Woman costume with a time of 3:57.  That was amazing!  But was more amazing is the inspiration she has given to others that are surviving cancer, caregivers to those survivors and to all those that may hear those words… “you have cancer”  Then after the possibility of more cancer they removed her spleen at the end of February.  She ran the Boston Marathon 6 weeks after that surgery this past April.  The results were negative.  They didn’t find cancer in her spleen.  What a crazy year enduring what she likes to call “The Toughest Marathon of My Life” Look the beast in the eye.  Focus on what makes you strong.  Endure.   Her word rang out again…

“No one can hold you back from doing all the things you want to do.  Just keep your goals in sight, listen to your body and take one day at a time.  Some days will be better than others, but every day is a blessing. - so make each day the best it can be. "

Today & tomorrow we are Sharing hope.  Feeling hope.  Spreading hope.   When you Relay you are in a field of hope.  

What do you hope for?  
 Quality of life?  
Better treatments?  A cure for cancer? Look around.  That is what we all hope for at Relay. 

We celebrate life. 
We remember those we have lost 
We fight back to find a cure. 
Creating a world with less cancer and more birthdays. Thank you for being here, for making a difference in the fight against cancer, for making this day and every day the best it can be. 

Are you ready? 
Let’s Relay!

Thursday, May 5, 2011

Boston Marathon Results!

Here it is...  the final results and to share with you the thank you note I sent to my donors... what a great marathon, a great focus for me during this crazy time in my life.  
Note:  On that Tuesday following the marathon on 4/19 there was an All Staff Briefing where they shared my "update" with the ACS staff nationwide.  I was honored as they share my story as inspiration and to show my Wonder Woman photo on screen and on the webcast.  I was in the air traveling to Salt Lake City for our annual family vacation at Snowbird and not able to see it live, but my friends shared the moment and the virtual cheers from across the country -- how cool is that!

My thank you note:

Thank you to all the ACS DetermiNation volunteers and staff too!  

This truly was my best experience for DNation!  I consider myself an "expert"!  :) 
The Dream Team was truly amazing with their participation and results!  
THANK YOU!
I had to share my results and experience in photos as it is truly a celebration of life for me to have these results after only 6 weeks after having my spleen removed and 5 months since my last chemo treatment.  :)  

"Focus on what makes you happy and strong, no matter what, live it, breathe on and you too will go beyond being a survivor!"
- Nancy E Cook


My Boston Marathon Results! 
(I looked these up for my thank you notes and had to share with all of you!) THANK YOU for your support of me during these past months of trials and tribulations! :)

9162 Cook, Nancy E 46 F Belchertown MA USA 
SPLITS: 
5k = 0:21:17
10k = 0:43:18
Half = 1:35:00
Overall pace = 0:08:02
Finish Time Official. = 3:30:27


98% finished that started the race - below is based on finishers 
Time Overall = 7797 out of 24338 = Top 32% of all finishers
Gender - 1447 = 10281 = Top 14% of all women
Division = 101 = 1611 = Top 6% in age 45-49
Top woman finisher in my age group was 2:51:02 and number 10 was 3:12:40
Definitely do-able times in my book for the future! :)


ACS DetermiNation
Boston is my #5 DetermiNation effort in less than 3 years !!
I raised $1933.80 for the American Cancer Society through the Boston Marathon effort and the amazing support of all my donors !!
The Dream Team (6 truly incredible athletes) raised $18,893.80 !!
19 marathon runners supported ACS DetermiNation at the Boston Marathon and raised $47,614.50 !!

Time for a new goals! :)
So incredibly happy with my results and the truly amazing efforts in the fight against cancer !!

What's next? Vermont 50 miler in October and NYC Marathon in November and what ever else comes before that! 

Life is good. :)