My journey - battling lymphoma
Recently I celebrated my 46th birthday. I love celebrating birthdays! Then I participated as a co-captain for our local "Quabog" Relay For Life and the Pack 57 Rocks! Cub Scout Team. This was the time frame that I had discovered an uneasiness in my stomach and growth in my spleen and stomach. After weeks of monitoring, my husband Steve took me to the doctor who felt the lumps and ordered a CT scan. The CT scan showed a massive area, my spleen enlarged to twice its size and an additional growth lower in my stomach. Next was the localized CT guided biopsy and subsequent PET scan. The biopsy showed positive for lymphoma and most likely Diffuse Large B-cell Lymphoma.
This is my online journal sharing my experience through battling this cancer that has abruptly entered my life for no apparent reason. The story is documented here if you want to start from the beginning, you can check the archives on the side bar.
As a top competitive master athlete this year winning my age group at the Marine Corps Marathon and placing 3rd in the New England Trail Running Championship I have been truly excited with my results of late and am a truly driven athlete. Driven by goals.... my goal right now.... to beat this "thing"!
Showing posts with label survivorship. Show all posts
Showing posts with label survivorship. Show all posts
Friday, May 20, 2011
Castleton State College Magazine- Wonder Woman highlight!
Last spring I communicated with my alma mater Castleton State College on my recent challenge with my upcoming Boston marathon after my lymphoma diagnosis. I sent them the same interview info I shared with the ACS and then to my surprise this week a friend alerted me to this amazing article featuring my story. A wonderful piece that I am so thankful to share with all of you. Brought tears to my eyes reading it and just feeling the support of so many of you all over and thankful for my family and friends once again!
Friday, May 13, 2011
"HOPE" for Relay For Life Fight Back Ceremony
I wrote this for a Relay that I could not appear in person. They asked me to write my story in order to present it at their "Fight Back" Ceremony. I wrote it in 3rd person. Hope you like it. :) Please leave a message if you stop by!
Hope.
It IS all about HOPE... and once you have HOPE
you can share HOPE and if you inspire others, they can in turn inspire you."
These words are from a woman in Western Mass, a woman that I heard speak last fall when she was in the middle of treatment for Stage 4 diffuse large Bcell lymphoma. Her words rang loud and clear for all of us in the room at this special Relay For Life Summit.
She shared her experience of hearing those words… “you have cancer” She shared the experience of her treatment, her fantastic doctors & nurses She shared how she finds strength, in people like you and me, people that Relay, people that care enough to fight back against cancer and support the mission of the American Cancer Society.
We support our cancer survivors in our community.
This woman, Nancy, in the fall she ran the Chicago marathon 2/3 of the way through treatment in a Wonder Woman costume with a time of 3:57. That was amazing! But was more amazing is the inspiration she has given to others that are surviving cancer, caregivers to those survivors and to all those that may hear those words… “you have cancer” Then after the possibility of more cancer they removed her spleen at the end of February. She ran the Boston Marathon 6 weeks after that surgery this past April. The results were negative. They didn’t find cancer in her spleen. What a crazy year enduring what she likes to call “The Toughest Marathon of My Life” Look the beast in the eye. Focus on what makes you strong. Endure. Her word rang out again…
“No one can hold you back from doing all the things you want to do. Just keep your goals in sight, listen to your body and take one day at a time. Some days will be better than others, but every day is a blessing. - so make each day the best it can be. "
Today & tomorrow we are Sharing hope. Feeling hope. Spreading hope. When you Relay you are in a field of hope.

What do you hope for? Quality of life?
Better treatments? A cure for cancer? Look around. That is what we all hope for at Relay.
We celebrate life.
We remember those we have lost
We fight back to find a cure.
Creating a world with less cancer and more birthdays. Thank you for being here, for making a difference in the fight against cancer, for making this day and every day the best it can be.
Are you ready?
Let’s Relay!
Hope.
It IS all about HOPE... and once you have HOPE
you can share HOPE and if you inspire others, they can in turn inspire you."
These words are from a woman in Western Mass, a woman that I heard speak last fall when she was in the middle of treatment for Stage 4 diffuse large Bcell lymphoma. Her words rang loud and clear for all of us in the room at this special Relay For Life Summit.
She shared her experience of hearing those words… “you have cancer” She shared the experience of her treatment, her fantastic doctors & nurses She shared how she finds strength, in people like you and me, people that Relay, people that care enough to fight back against cancer and support the mission of the American Cancer Society.
We support our cancer survivors in our community.
This woman, Nancy, in the fall she ran the Chicago marathon 2/3 of the way through treatment in a Wonder Woman costume with a time of 3:57. That was amazing! But was more amazing is the inspiration she has given to others that are surviving cancer, caregivers to those survivors and to all those that may hear those words… “you have cancer” Then after the possibility of more cancer they removed her spleen at the end of February. She ran the Boston Marathon 6 weeks after that surgery this past April. The results were negative. They didn’t find cancer in her spleen. What a crazy year enduring what she likes to call “The Toughest Marathon of My Life” Look the beast in the eye. Focus on what makes you strong. Endure. Her word rang out again…
“No one can hold you back from doing all the things you want to do. Just keep your goals in sight, listen to your body and take one day at a time. Some days will be better than others, but every day is a blessing. - so make each day the best it can be. "
Today & tomorrow we are Sharing hope. Feeling hope. Spreading hope. When you Relay you are in a field of hope.

What do you hope for? Quality of life?
Better treatments? A cure for cancer? Look around. That is what we all hope for at Relay.
We celebrate life.
We remember those we have lost
We fight back to find a cure.
Creating a world with less cancer and more birthdays. Thank you for being here, for making a difference in the fight against cancer, for making this day and every day the best it can be.
Are you ready?
Let’s Relay!
Friday, March 11, 2011
I am here.
I got the call.
Dr. Barnes called on Tuesday & gave us the good news and there is NO cancer in my spleen. It was the best news we had heard all year. It took them a whole week to slice and dice the thing, but it turned up negative. Even better news is that it will be a close follow up of CAT scans & blood work for 2 years. I feel like I have hit another milestone in this journey. Survivorship.
This latest experience has me reflecting on my past - working with the American Cancer Society - and the amazing volunteers that were "cancer survivors" to now truly discovering what it means to be a "survivor".
I remember specifically in my early years working as an Area Director for 5 counties in the state of New Hampshire. I called it the "West". :) 5 powerful small counties with so much potential. I replaced this staffer (I think her name was Kate) that the volunteers held in high regard and respect. They were tough shoes to fill. So there I was in my early 20's... working with professional volunteers to support the mission of the American Cancer Society. It was the Gail As & the Bob M's & the sweet Suki's that I "cut my teeth" on to develop my skills in working with volunteers to support the mission of the ACS and it is those early experiences working in the "field" that I remember the most .
Gail A. was a strong woman in the Peterborough area. I remember her not wanting to be called a "survivor" because it was truly something personal to her. She didn't want to be "jinxed" by the label. I can see how she feels now that I have had cancer. It is a beast. Fast forward to the Chicago Marathon - Kristin McQueen, cancer survivor & marathoner & IRONWOMAN says it best - "Suck it cancer!" She tapes those words on the back of her race shirt where ever she goes (raising more than $10K each year for ACS DetermiNation)..... It's true - it may be chasing you your whole life. Now that I have had cancer I realize there is nothing that ever says you are done. So many I have known have been "hit hard" multiple times. Mary Beth Redell from American Airlines - who we lost this past year to her final battle with colon cancer - is an amazing strong example. Others like sweet Suki from Peterborough would be the volunteers that lead that tiny town into making tens of thousands of dollars at Making Strides Against Breast Cancer. Her passion along with the passion of Betty Borry I got to know as the staff person at the Breast Cancer Survivor Adventure Weekend back in the mid 90's- where myself and cancer survivors (all ages and all stages) were given the opportunity to get away for the weekend and work through a ropes course, writing, kayaking and reflecting. It was an amazing experience for me I will never forget. Hearing about what it meant for each of those women to be surviving cancer face to face in that setting was one of the most inspiring things I have done in my life.
I remember in July when I was first diagnosed. I was scared, but decided to look the beast in the eye. I laughed as I told my friend Judy I couldn't wait to wear that purple tshirt, the sash and walk that lap! Being a survivor is a celebration. A celebration of life. My life, the lives of others who have faced the beast and lived another day. More birthdays - for more survivors - a mission you can relate to especially if you are someone like me who just loves their birthday! But this second time that I thought it could be more cancer, that scared me - I couldn't write about it. I had had enough. I had finished my chemo treatments, I fought hard, lost my hair, eyelashes & eyebrows, felt like crap, exhausted & beat up. My hair was just barely starting to come back so I didn't have to wear that crazy blonde wig. I kept my positive outlook, kept running to stay strong (mentally & physically)... to now hear this news of "Sorry we 'saw something' in your PET scan". EEK. Spleen removal? Major surgery? Whatever it takes is all that I could think or say. We had the best docs taking care of me and we put all our trust in them. Now, with the results in hand - no cancer - it is time to go back to living a normal life - wow - but I will never be "normal" after this experience.
I am here.
This was on the back of the Relay For Life Tshirt in Boulder Colorado when I moved out west (the REAL west). :) Kristin Sheldon was an artist I met on Pearl Street. On the weekends it was always a fair, vendors with their "carts" - and I loved her cards! I introduced myself to her that day and by chance it was the 1 year anniversary of a dear friend of hers that she lost to breast cancer. A true calling - me asking her to design a card & a bookmark to give to luminaria donors and the words in her font on the back of the survivor tshirt. The words meant so much to me at that time, but mean so much more to me now. I am here - PERIOD. I am here to do what it takes to share, to inspire, to encourage and to care about making a difference - a REAL difference. I don't quite yet know what that means yet. But I know there is more to come for me. I am alive due to the research and where we are with cancer treatments right now, because of amazing organizations like the American Cancer Society. I am here to do what it takes.
There are so many cancer survivors - so many stories of strength. I want to share my story to give others strength, but it isn't really about my story, I want to hear everyone else's story, it is a collection of all of the stories out there - because in every story there is inspiration, hope and a celebration of a life.
Be strong. Stay strong. Celebrate every day, because each day is a blessing.
Be strong. Stay strong. Celebrate every day, because each day is a blessing.
I would like to share this card that Kristin developed for us at the American Cancer Society.
"With a trail of light, there is no night"
We celebrate the lives of the cancer survivors by honoring them at the Relay For Life luminaria ceremonies and paying tribute to the memories of those we have lost to cancer - "the beast".... we light a trail of luminaries to celebrate those lives. Remember at your Relay this year to celebrate those you love, those you care about and those in your community that bring strength to our world.
I am truly blessed to have such an amazing support system.... my family, my friends, my colleagues at the American Cancer Society - my doctors, Dr. Sean Mullally and Dr. Jeffery Barnes. ALL of the nurses and people that have smiled when I needed a smile, prayed when I needed strength & sent their love when I needed a boost!
Thanks for reading, stopping by - please leave a comment - I love to hear from everyone.
Tuesday, December 7, 2010
All Staff Briefing - My notes! :)
Thank you
It was a year ago that I stood on this stage to celebrate my 15th year with the acs and shook the hands of Dr sefrin and his cabinet - you may not recognize me cause I was a brunette. Little did I know at that time what my year had in store.
You see, I am a top ranked master runner having competed in 25 marathons, that's 26.2 miles a pop... Including 4 ironman triathlons. I placed 7th master in Boston and last year won my age group at Marine Corps marathon racing with 40K people around DC. In my 40s I am in the best shape of my life.
I too love to celebrate my birthday but I didn't realize that impact until just after my 46th birthday in June. It was around the same time as our local Relay where I am a team captain with our Cub Scouts that while running in training for the Chicago marathon I felt a lump in my stomach. After feeling it grow my husband urged me to go to the doctor who ordered a cat scan and we waited days for the results. I remember sitting in the doctors office when she told us "we think you have lymphoma"- what? Cancer? I could see the tears in my husbands eyes, and my ACS experience has shown me this could go many ways - so without hesitation we started to make some more appointments - I just wanted this thing gone.
What felt like months was weeks of tests, waiting to get in to see the oncologist, more tests and working with the insurance to make sure it was all pre approved. Once we had a diagnosis of diffuse large b cell lymphoma we needed to be sure that it was indeed the whole story. Finally with approval of a local oncologist we were off to mass general to see a lymphoma specialist - dr barnes -a biopsy and more tests. We then had the right diagnosis in hand and were able to get connected with a oncologist locally we liked - one that fit, one who we could trust, which so important. Dr Mullally understood my drive as an athlete ... Because I was going to do the Chicago marathon, 2/3 of the way through my treatment even if I had to walk.
I realize this will be the toughest marathon of my life and just like a marathon I need a plan. When I would share with my friends, family and colleagues - they would remark "are you kidding? You are the healthiest person know!". Like everyone I was in denial, but when I lost my hair it all became real... I am bald, I have cancer. See? (take off hair)
My plan? Stay strong, be positive. I needed a symbol of strength and Wonder Woman was a natural fit! My sister made our costumes and my friend Cara was going to support me as Batgirl. Here we go! (put on cap and cape). Amazing what a costume can do to fuel your efforts!
Mile 1-15
Just like treatment, I was still strong, feeling fast enjoying all the conversations along the way sharing my story with all would listen. Stay hydrated and pace yourself!
Mile 16-20
The tough need to get tougher -medical is key and you need to listen to your body. Have hope, share hope along the way. Halfway through treatment al the symptoms are starting to amplify.
Mile 21-24
They say at a marathon starts at mile 21, you may need to readjust your goal but keep that finish line in sight and don't give up! Even though this may be the last visit to the doctor the accumulative effect of chemotherapy is more exhausting than ever.
Mile 25-26.2
Yes or no? Choose your attitude, do your best, smile - you are a symbol of hope.
I remember the cheers from the city of Chicago rooting for wonder woman and batgirl all the way! And I remember my tears of joy crossing that finish line.
I beat my goal and ran a 3 hr 57 min marathon thanks to the support of my loving husband and Batgirl (car and Steve stand up)
But recovery is a challenge, give your body and mind a break - rest is so important to getting back on the road.
What's next? I have some more tests and PET scan next week to see that my treatment was successful ...
And my 5th acs Determination marathon will be Boston in April with my 6 member ACS Dream Team in force!
Just remember that no one can hold you back from doing all the things you want to do. Keep you goals in sight, take one day at a time, some days will be better than others, but every day is a blessing -so make each day the best it can be."
_____________________________
Here is the photo "movie" that I put together for this event. What was shared was 10 photos, but this gives you even better picture of the journey. Enjoy.

It was a year ago that I stood on this stage to celebrate my 15th year with the acs and shook the hands of Dr sefrin and his cabinet - you may not recognize me cause I was a brunette. Little did I know at that time what my year had in store.
You see, I am a top ranked master runner having competed in 25 marathons, that's 26.2 miles a pop... Including 4 ironman triathlons. I placed 7th master in Boston and last year won my age group at Marine Corps marathon racing with 40K people around DC. In my 40s I am in the best shape of my life.
I too love to celebrate my birthday but I didn't realize that impact until just after my 46th birthday in June. It was around the same time as our local Relay where I am a team captain with our Cub Scouts that while running in training for the Chicago marathon I felt a lump in my stomach. After feeling it grow my husband urged me to go to the doctor who ordered a cat scan and we waited days for the results. I remember sitting in the doctors office when she told us "we think you have lymphoma"- what? Cancer? I could see the tears in my husbands eyes, and my ACS experience has shown me this could go many ways - so without hesitation we started to make some more appointments - I just wanted this thing gone.
What felt like months was weeks of tests, waiting to get in to see the oncologist, more tests and working with the insurance to make sure it was all pre approved. Once we had a diagnosis of diffuse large b cell lymphoma we needed to be sure that it was indeed the whole story. Finally with approval of a local oncologist we were off to mass general to see a lymphoma specialist - dr barnes -a biopsy and more tests. We then had the right diagnosis in hand and were able to get connected with a oncologist locally we liked - one that fit, one who we could trust, which so important. Dr Mullally understood my drive as an athlete ... Because I was going to do the Chicago marathon, 2/3 of the way through my treatment even if I had to walk.
I realize this will be the toughest marathon of my life and just like a marathon I need a plan. When I would share with my friends, family and colleagues - they would remark "are you kidding? You are the healthiest person know!". Like everyone I was in denial, but when I lost my hair it all became real... I am bald, I have cancer. See? (take off hair)
My plan? Stay strong, be positive. I needed a symbol of strength and Wonder Woman was a natural fit! My sister made our costumes and my friend Cara was going to support me as Batgirl. Here we go! (put on cap and cape). Amazing what a costume can do to fuel your efforts!
Mile 1-15
Just like treatment, I was still strong, feeling fast enjoying all the conversations along the way sharing my story with all would listen. Stay hydrated and pace yourself!
Mile 16-20
The tough need to get tougher -medical is key and you need to listen to your body. Have hope, share hope along the way. Halfway through treatment al the symptoms are starting to amplify.
Mile 21-24
They say at a marathon starts at mile 21, you may need to readjust your goal but keep that finish line in sight and don't give up! Even though this may be the last visit to the doctor the accumulative effect of chemotherapy is more exhausting than ever.
Mile 25-26.2
Yes or no? Choose your attitude, do your best, smile - you are a symbol of hope.
I remember the cheers from the city of Chicago rooting for wonder woman and batgirl all the way! And I remember my tears of joy crossing that finish line.
I beat my goal and ran a 3 hr 57 min marathon thanks to the support of my loving husband and Batgirl (car and Steve stand up)
But recovery is a challenge, give your body and mind a break - rest is so important to getting back on the road.
What's next? I have some more tests and PET scan next week to see that my treatment was successful ...
And my 5th acs Determination marathon will be Boston in April with my 6 member ACS Dream Team in force!
Just remember that no one can hold you back from doing all the things you want to do. Keep you goals in sight, take one day at a time, some days will be better than others, but every day is a blessing -so make each day the best it can be."
_____________________________
Here is the photo "movie" that I put together for this event. What was shared was 10 photos, but this gives you even better picture of the journey. Enjoy.

All Staff Briefing - Survivor Speaker
I recently was honored to be asked to be the American Cancer Society staff survivor speaker at our National All Staff briefing in Atlanta, Georgia. I worked with Laurie Entriken from our national office Talent Strategy team and shared my blog and experience with her before getting to work on putting together a presentation for Friday, December 3. Steve took the time off from work to fly down and support me - which truly thrilled me as he had not been to our National Home Office. I was so proud to share our organization with him on the trip. :)
It was a few reiterations, drafts and practices of the presentation in front of Steve that got me to the final. I had not practiced a speech so much before the day as I am pretty good at "winging it" but it paid off. :)
There was about 200 people there in the audience and another 200 across the country tuning in to the All Staff Briefing and my speech at the end of the program. Cara - aka: BatGirl came to see me speak that morning, taking time off from work as well --- (she is such a busy girl - it meant the world to have her there too!).
I felt pretty shaky, although listening to it now I can't feel the shakiness like I could on stage. My mouth was so dry and it got worse through the presentation so next time I am going to drink a ton of water to prepare.... :) I didn't have enough strength to open up that bottle of water, but that would have helped too. : )
It has been great to look at all the pieces of my story that will make a difference to someone that will hear it and I think the marathon analogy was a good one. I will also post my notes / speech in a separate post for you to see as well.
Here is the presentation - enjoy! Please leave a comment below and let me know what you think! :)
I want to share the photos that were displayed as well - it took me going through 35 favorites to get to the 10 final pics to share as part of the slide show. I referred to them through my presentation so they will be posted with my notes from the presentation.
It was a few reiterations, drafts and practices of the presentation in front of Steve that got me to the final. I had not practiced a speech so much before the day as I am pretty good at "winging it" but it paid off. :)
There was about 200 people there in the audience and another 200 across the country tuning in to the All Staff Briefing and my speech at the end of the program. Cara - aka: BatGirl came to see me speak that morning, taking time off from work as well --- (she is such a busy girl - it meant the world to have her there too!).
I felt pretty shaky, although listening to it now I can't feel the shakiness like I could on stage. My mouth was so dry and it got worse through the presentation so next time I am going to drink a ton of water to prepare.... :) I didn't have enough strength to open up that bottle of water, but that would have helped too. : )
It has been great to look at all the pieces of my story that will make a difference to someone that will hear it and I think the marathon analogy was a good one. I will also post my notes / speech in a separate post for you to see as well.
Here is the presentation - enjoy! Please leave a comment below and let me know what you think! :)
I want to share the photos that were displayed as well - it took me going through 35 favorites to get to the 10 final pics to share as part of the slide show. I referred to them through my presentation so they will be posted with my notes from the presentation.
Thanks for stopping by - I know it has been a while.
I get my PET scan tomorrow and see the Doc on Friday - Wish me luck! :)
N
Posting a link to my presentation at the New England Relay U from September --- now with 2 speaking engagements under my belt, I think I am getting better at sharing this personal experience! :)
"Bald Appearance brings standing O at the NEDIV Relay U!"
"Bald Appearance brings standing O at the NEDIV Relay U!"
Sunday, September 12, 2010
Bald appearance brings on standing O at the NEDIV Relay U!
Here it is -- I am posting the video of my presentation at the NE Division Relay For Life University.
It wasn't easy, telling my story for the first time. I had a tough time practicing it, with the tears welling up in my eyes and having a hard time finding a flow for a 7 minute --- "let me tell you my life and stress" - presentation. Although Steve is quick to remind me that I do like to talk about myself. :) I had all kinds of great ideas, all kinds of wonderful thoughts, humorous thoughts and had my written notes and bullet points there to get it down so I could get it out and hopefully be well received. I was thinking that I wanted more audience participation (so they don't fall asleep - kidding), but you never know how that is going to go, so I built it in and even if it went off just a little I thought it would be good to have that interaction. But then it was about the story and the humor. So again, here it is, I didn't get in as many as the fun things as I had hoped and rushed the beginning, it was a little all over the place, but as Steve said when we watched it later, as soon as the hair came off - - I seemed to relax and it got better from there. :)
I hope you enjoy the presentation --- Personally it is pretty funny to watch yourself speak and see the shake in my voice and hands --- but it wasn't too bad for the first time EVER sharing my story with around 400 people, a few I know, most I don't know.... I know there are quite a few things I will change for next time, and I am sure it will be a much smoother presentation and hopefully I will get in more of the pertinent points and not wander so much and get into the details that may not be needed.
It was so great at the end with such great people giving me hugs and encouragement. Sue Ann was fabulous in her position as VP of Relay in New England putting on such a great Relay U. She was there for me a midst all of the craziness of coordinating the successful event -- I thank her for that and for asking me to share and hopefully inspire others.
It was good to see and meet some amazing volunteers there too. Dick, Laura, Gordon, Ben, Mark, Mary Kate, Lynn, Bob A, Dan, Susan and more! To be there and feel the passion of all these volunteers making Relay a HUGE success in New England is truly and inspiration to me!
Please don't forget to leave a comment if you stop by!

It wasn't easy, telling my story for the first time. I had a tough time practicing it, with the tears welling up in my eyes and having a hard time finding a flow for a 7 minute --- "let me tell you my life and stress" - presentation. Although Steve is quick to remind me that I do like to talk about myself. :) I had all kinds of great ideas, all kinds of wonderful thoughts, humorous thoughts and had my written notes and bullet points there to get it down so I could get it out and hopefully be well received. I was thinking that I wanted more audience participation (so they don't fall asleep - kidding), but you never know how that is going to go, so I built it in and even if it went off just a little I thought it would be good to have that interaction. But then it was about the story and the humor. So again, here it is, I didn't get in as many as the fun things as I had hoped and rushed the beginning, it was a little all over the place, but as Steve said when we watched it later, as soon as the hair came off - - I seemed to relax and it got better from there. :)
I hope you enjoy the presentation --- Personally it is pretty funny to watch yourself speak and see the shake in my voice and hands --- but it wasn't too bad for the first time EVER sharing my story with around 400 people, a few I know, most I don't know.... I know there are quite a few things I will change for next time, and I am sure it will be a much smoother presentation and hopefully I will get in more of the pertinent points and not wander so much and get into the details that may not be needed.
It was so great at the end with such great people giving me hugs and encouragement. Sue Ann was fabulous in her position as VP of Relay in New England putting on such a great Relay U. She was there for me a midst all of the craziness of coordinating the successful event -- I thank her for that and for asking me to share and hopefully inspire others.
It was good to see and meet some amazing volunteers there too. Dick, Laura, Gordon, Ben, Mark, Mary Kate, Lynn, Bob A, Dan, Susan and more! To be there and feel the passion of all these volunteers making Relay a HUGE success in New England is truly and inspiration to me!
Please don't forget to leave a comment if you stop by!
Some other photo highlights from the event below:
Me with Don & Peg (CEO & COO of NEDIV)
Sue Ann, Judy, ME and Kelli
Steve & I on stage after the presentation
(note Steve holding onto my hair that I inadvertently left on stage) :)
Friday, September 10, 2010
NEDIV Speaking Notes: "I am a Survivor"
EMCEE:
When it comes to the fight against cancer not all of us have been hit directly by cancer; however, we all have taken the stand that we will rise above cancer until it is defeated.
In the words of Vince Lombardi, “It’s not whether you get knocked down; it’s whether you get back up.”
And now someone who has done just that …Nancy Cook... a team captain from the Quabog Relay in Western MASS, National Director of the National Corporate Team Program, whose 16 year career with the Society began in New Hampshire.
ME:
Thank you everyone.
As a top competitive master athlete in the New England area being on the top of my game is something I am very proud of…. I am poised to fight back. I pride myself on listening to my body in training. When I found a lump in my stomach in mid June my body fat was right around 16% and you can feel everything! My amazing husband Steve pushed me to go to the doctor and by the time I went in for the biopsy my spleen had doubled in size and at that time we were told that I had cancer. It was crazy. I had just placed 3rd in my age at the USAT New England Trail Running Championships, and was racing every weekend. Before that in in 2007 I was 7th master at the Boston marathon finishing in 3 hours and 5 minutes. And in 2009 I won my age group at the Marine Corps Marathon. I was the healthiest person I know. You don’t want to piss me off! My family, my friends, my co-workers were all floored when I told them the news – it was stage 4 Lymphoma. And me – I was in denial ---- with my daily routine of running long miles, balancing my family life, my work and all our sporting activities, there is no time for cancer.
I am a survivor.
It hit me hard and I was full of questions – Is it curable? What did I do wrong? Will I die? What is chemotherapy anyway? Can I work? How long before the cancer is out of my body & how long before I am bald? How will my eight year old son Schuyler react and cope with a sick bald mother? I did know one thing - I don’t like being sick.
You may wonder what is like not having hair. I sure did. It was scary and I had tears in my eyes as my husband shaved my head right around the 2nd chemo treatment - after pulling out clumps of hair it was definitely time. But I am now sporting the Olympic swimmer look as I water-ski and appreciate the aerodynamics when I run. I just hope it doesn’t come back gray! And fun times ahead if it comes back blonde! My colleagues asked that I have photos taken of me at the “wig salon” with all the different styles of hair so they all could vote! We all had many laughs looking at the Nancy show! I miss the sweat absorption properties of hair and the extra padding. One day while trail running I hit and bruised my head on a tree branch... came up with some great quotes that day, but OUCH!
I am a survivor.
Now in the middle of it all I am in the midst of fighting back. I am ½ way through my chemotherapy treatment. OK – almost ½ way there…. But I am counting the days! Fighting back through inspiration, hope and humor…. I look for hope everywhere – after facing that moment that my life could have been taken away & having to share that scary feeling with my family – it IS all about HOPE. And once you have HOPE you can share hope and if you inspire others, they can in turn inspire you. The doctors gave me HOPE that I could still “run” the Chicago marathon, which will be my 27th marathon. I had signed up and am raising money for ACS through DetermiNation. Doc Mullally did say it is a little freakish – but seeing my fitness level and drive, he says it is possible – of course that was right after he called me a “beast” (in a nice way of course).. So now it keeps me going – keeps me pushing – and in my intense way of doing things – keeps me fighting back - strong. I am running in a Wonder Woman costume, alongside a friend who will be dressed as Batgirl – if not just to make a statement, but for inspiration and crowd appeal. I will run that marathon. I will finish.
I am a survivor.
I recently attended the UTC East Hartford Relay For Life and had the opportunity to walk in my first survivor lap – and wear my first sash & purple shirt! It was more amazing than I ever imagined. Needless to say I love Relay more than ever.. My husband Steve in his caregiver sash remarked that “we” have not finished chemotherapy, so are you a survivor yet?” My response? I lived to see another day right?
Yes – I am a survivor!
So just remember:
No one can hold you back from doing all the things you want to do. Just keep your goals in sight, listen to your body and take one day at a time. Some days will be better than others, but every day is a blessing – so make each day the best it can be.
I am a survivor.
I am fighting back.
When it comes to the fight against cancer not all of us have been hit directly by cancer; however, we all have taken the stand that we will rise above cancer until it is defeated.
In the words of Vince Lombardi, “It’s not whether you get knocked down; it’s whether you get back up.”
And now someone who has done just that …Nancy Cook... a team captain from the Quabog Relay in Western MASS, National Director of the National Corporate Team Program, whose 16 year career with the Society began in New Hampshire.
ME:
Thank you everyone.
As a top competitive master athlete in the New England area being on the top of my game is something I am very proud of…. I am poised to fight back. I pride myself on listening to my body in training. When I found a lump in my stomach in mid June my body fat was right around 16% and you can feel everything! My amazing husband Steve pushed me to go to the doctor and by the time I went in for the biopsy my spleen had doubled in size and at that time we were told that I had cancer. It was crazy. I had just placed 3rd in my age at the USAT New England Trail Running Championships, and was racing every weekend. Before that in in 2007 I was 7th master at the Boston marathon finishing in 3 hours and 5 minutes. And in 2009 I won my age group at the Marine Corps Marathon. I was the healthiest person I know. You don’t want to piss me off! My family, my friends, my co-workers were all floored when I told them the news – it was stage 4 Lymphoma. And me – I was in denial ---- with my daily routine of running long miles, balancing my family life, my work and all our sporting activities, there is no time for cancer.
I am a survivor.
It hit me hard and I was full of questions – Is it curable? What did I do wrong? Will I die? What is chemotherapy anyway? Can I work? How long before the cancer is out of my body & how long before I am bald? How will my eight year old son Schuyler react and cope with a sick bald mother? I did know one thing - I don’t like being sick.
You may wonder what is like not having hair. I sure did. It was scary and I had tears in my eyes as my husband shaved my head right around the 2nd chemo treatment - after pulling out clumps of hair it was definitely time. But I am now sporting the Olympic swimmer look as I water-ski and appreciate the aerodynamics when I run. I just hope it doesn’t come back gray! And fun times ahead if it comes back blonde! My colleagues asked that I have photos taken of me at the “wig salon” with all the different styles of hair so they all could vote! We all had many laughs looking at the Nancy show! I miss the sweat absorption properties of hair and the extra padding. One day while trail running I hit and bruised my head on a tree branch... came up with some great quotes that day, but OUCH!
I am a survivor.
Now in the middle of it all I am in the midst of fighting back. I am ½ way through my chemotherapy treatment. OK – almost ½ way there…. But I am counting the days! Fighting back through inspiration, hope and humor…. I look for hope everywhere – after facing that moment that my life could have been taken away & having to share that scary feeling with my family – it IS all about HOPE. And once you have HOPE you can share hope and if you inspire others, they can in turn inspire you. The doctors gave me HOPE that I could still “run” the Chicago marathon, which will be my 27th marathon. I had signed up and am raising money for ACS through DetermiNation. Doc Mullally did say it is a little freakish – but seeing my fitness level and drive, he says it is possible – of course that was right after he called me a “beast” (in a nice way of course).. So now it keeps me going – keeps me pushing – and in my intense way of doing things – keeps me fighting back - strong. I am running in a Wonder Woman costume, alongside a friend who will be dressed as Batgirl – if not just to make a statement, but for inspiration and crowd appeal. I will run that marathon. I will finish.
I am a survivor.
I recently attended the UTC East Hartford Relay For Life and had the opportunity to walk in my first survivor lap – and wear my first sash & purple shirt! It was more amazing than I ever imagined. Needless to say I love Relay more than ever.. My husband Steve in his caregiver sash remarked that “we” have not finished chemotherapy, so are you a survivor yet?” My response? I lived to see another day right?
Yes – I am a survivor!
So just remember:
No one can hold you back from doing all the things you want to do. Just keep your goals in sight, listen to your body and take one day at a time. Some days will be better than others, but every day is a blessing – so make each day the best it can be.
I am a survivor.
I am fighting back.
Thursday, September 9, 2010
Telling my story --- >>> Take 1
Not sure how many may see this post as it is a rehearsal for my presentation on Saturday for those that may be attending the Summit in Springfield.... but for the most part I think I am safe, not knowing the traffic to my site from local Relay leadership.
This is a practice of my speech --- which really didn't go so well in my mind.
But it is a first try, so I hope to get better. Gotta love Photo Booth! :)
I wish I could be just a little funnier..... :) I will keep practicing. :) It was hard to do and honestly I was fighting the tears when I watched it back --- so try try again.
My notes for NEDIV Relay U Closing
Celebrate Birthdays
Audience Participation = Fight Back
My 46th Birthday
Lump discovery
Athletic Achievements
Cancer Diagnosis
Hope plus Humor = Healing
Quote:
"It IS all about HOPE... and once you have HOPE
you can share HOPE and if you inspire others, they can in turn inspire you."
Losing your Hair
Being Bald
Many Looks - The Pirate Cap
Don't stop - keep pushing, keep running
Chicago Marathon
"Freakish"
Survivorship
UTC Relay
Caregiver
Quote:
"No one can hold you back from doing all the things you want to do. Just keep your goals in sight, listen to your body and take one day at a time. Some days will be better than others, but every day is a blessing. - so make each day the best it can be. "
Playing around with Photo Booth this morning -- some self portraits getting ready for my rehearsal. :)



Monday, August 30, 2010
UTC East Hartford Relay For Life - "I am a survivor!"
Steve and I traveled to East Hartford on Saturday for the United Technologies East Hartford Relay For Life. This is the second corporate Relay that UTC has hosted, sponsored and provided support in volunteers, location & overall support. We were able to attend last year's event and take photos & attend the dinner for the survivors and caregivers. It was an amazing and beautiful celebration.
This year, I have been having a couple slow weeks, recovering from treatment and new side effects with Methatrexate that have just been making me so tired and unmotivated. I got the great news from Wendy last week that UTC Relay was above goal and raised more than $100K. Their team numbers are up and we were expecting a great weekend. Terry, Carson & Turner came to visit to go to a Motocross National Competition in Southwick, MA -- so we headed to the UTC event in the morning as they traveled to the event.
First when we got there I brought Steve over to the Survivor Registration tent. It was with pride that I filled out the registration and got the huge smiles and congratulations from the volunteers. I got my first PURPLE tshirt with the word "survivor" on it. Steve said "we aren't done with chemo yet".... my reply "I lived another day..... I am a survivor" :) And YOU are my Caregiver -- the best one ever! I helped him on with his sash, and he helped me with mine. Pretty special moment, hard to explain the feeling but it was truly such an honor. Then at the Opening Ceremonies I do my usual with the camera, catching as many faces and emotions of the event as possible. :) But now with my survivor sash -- people were smiling at me with warmth and care. It was "different" than before, they were all connecting with me. If they were a survivor, caregiver and all those around because that is why they are here, to celebrate survivorship and to honor those they may have lost. It was amazing.
So we walked the "Lap" -- I took photos of people SMILING - HAPPY - CELEBRATING! I took photos and walked on the outside to the front and then back on the outside on the other side of the track. People must have thought I was crazy with my fancy camera bouncing all around the lap! :) It makes me laugh thinking about it. Watching Steve's smile and love always fuels me, like I am not crazy, but just that I am me, and I continue to be me. The one thing that I noticed more than ever was the support of the caregivers around their survivor. The 2 girls in pink were so cute --- they laughed and smiled -- "SHE is my caregiver!" :) It was all around you - the love and caring people have for eachother. And I can relate to them in my own way of being a cancer survivor, although all cancers and treatments are different, it is an experience that all these people have faced, and won, or are still fighting. It truly made me proud.
From the lap all the survivors and caregivers got on air conditioned transit buses and were driven to the top executive level where you can overlook the football field at Rentschler Field.
It was a beautiful setting with lots of windows. It was a catered yummy luncheon with strawberry shortcake for dessert. :)
The survivor speaker recently had moved to this area and was a friend of one of the committee members. She had participated in the Virginia Beach Relay (One of our top Relay events in the country!) and she was so excited to be invited because she wouldn't miss a Relay. Her speech was short and sweet, poignant and clear. She is a SURVIVOR. She celebrates because SHE IS HERE. She fights because the gene she has for breast cancer could be passed down to her beautiful daughters and potentially her son's children. I wish I could remember all her words, because it was so well said --- and it meant so much to me. I don't know if I hear all these words differently because I have cancer, or she was just so great (I think it is for BOTH reasons)--- She encouraged us all to talk to eachother, share our stories, offer support and be strong. I have a great photo of her and her family below. Such a sweet woman and a great family. I felt truly blessed to hear her speak that day.
This year, I have been having a couple slow weeks, recovering from treatment and new side effects with Methatrexate that have just been making me so tired and unmotivated. I got the great news from Wendy last week that UTC Relay was above goal and raised more than $100K. Their team numbers are up and we were expecting a great weekend. Terry, Carson & Turner came to visit to go to a Motocross National Competition in Southwick, MA -- so we headed to the UTC event in the morning as they traveled to the event.
First when we got there I brought Steve over to the Survivor Registration tent. It was with pride that I filled out the registration and got the huge smiles and congratulations from the volunteers. I got my first PURPLE tshirt with the word "survivor" on it. Steve said "we aren't done with chemo yet".... my reply "I lived another day..... I am a survivor" :) And YOU are my Caregiver -- the best one ever! I helped him on with his sash, and he helped me with mine. Pretty special moment, hard to explain the feeling but it was truly such an honor. Then at the Opening Ceremonies I do my usual with the camera, catching as many faces and emotions of the event as possible. :) But now with my survivor sash -- people were smiling at me with warmth and care. It was "different" than before, they were all connecting with me. If they were a survivor, caregiver and all those around because that is why they are here, to celebrate survivorship and to honor those they may have lost. It was amazing.
So we walked the "Lap" -- I took photos of people SMILING - HAPPY - CELEBRATING! I took photos and walked on the outside to the front and then back on the outside on the other side of the track. People must have thought I was crazy with my fancy camera bouncing all around the lap! :) It makes me laugh thinking about it. Watching Steve's smile and love always fuels me, like I am not crazy, but just that I am me, and I continue to be me. The one thing that I noticed more than ever was the support of the caregivers around their survivor. The 2 girls in pink were so cute --- they laughed and smiled -- "SHE is my caregiver!" :) It was all around you - the love and caring people have for eachother. And I can relate to them in my own way of being a cancer survivor, although all cancers and treatments are different, it is an experience that all these people have faced, and won, or are still fighting. It truly made me proud.
From the lap all the survivors and caregivers got on air conditioned transit buses and were driven to the top executive level where you can overlook the football field at Rentschler Field.It was a beautiful setting with lots of windows. It was a catered yummy luncheon with strawberry shortcake for dessert. :)
The survivor speaker recently had moved to this area and was a friend of one of the committee members. She had participated in the Virginia Beach Relay (One of our top Relay events in the country!) and she was so excited to be invited because she wouldn't miss a Relay. Her speech was short and sweet, poignant and clear. She is a SURVIVOR. She celebrates because SHE IS HERE. She fights because the gene she has for breast cancer could be passed down to her beautiful daughters and potentially her son's children. I wish I could remember all her words, because it was so well said --- and it meant so much to me. I don't know if I hear all these words differently because I have cancer, or she was just so great (I think it is for BOTH reasons)--- She encouraged us all to talk to eachother, share our stories, offer support and be strong. I have a great photo of her and her family below. Such a sweet woman and a great family. I felt truly blessed to hear her speak that day.
So great to see friends and colleagues. I had the opportunity to speak with Don Gudaitis, the NE Division CEO - he has been so supportive since my diagnosis, offering any assistance... and we also were able to stop by their table and speak to the CFO of UTC -- it was so nice to hear Steve tell the story from the beginning with pride to Don and the CFO. I really enjoyed talking to the CFO's wife (so sorry I forgot their names --- can I blame chemo brain? :)) She was so caring and just really great to talk to.... It was a very special experience all around.
We gave hugs to all those we met at the luncheon - "real hugs" of care and concern and hope. It was truly HOPE full to be in that room with all that inspiration all around. I walked up to the woman speaker and asked her if she had wrote her speech down, it was that good -- told her she really needs to write it. I was inspired by her words. I can make a difference. She is making a difference, and all those there will go out and make a difference too. We got a beautiful purple flower centerpiece from the center of the table and walked out smiling ear to ear.
When we went back to the Relay, we decorated my luminaria bag, played a little football, entered a raffle (or 2 or 3..... :)) One was for these handmade wooden replica helicopters, so beautiful! It was a fantastic event and it was so great outside rather than inside to enjoy the fresh air and get some really great photos of the participants walking the track, (although being in the airplane hanger last year was awesome too).
We got to spend some time with Wendy and her beautiful family (I got some great impromptu family portraits) and wish Schuyler was there with us to experience it all - because he LOVES Relay and all the fun and happy people that are there. I am sharing a link to all the photos I took from Saturday -- hope you enjoy them. I will remember this Relay in my heart as my first Relay as a survivor --- it will truly be a special one for me --- as all 5000 plus Relays mean something to all those that participate. If you haven't been to a Relay, please consider finding a Relay in your area and sign up, join or start a team... it is something you can do to make a difference, to so many of those of us with cancer and for our future of finding a cure.
We will have our Cub Scout team again this year --- already working on promoting it early and planning our fundraising for the year! At that time it will be one full year of cancer survivorship for me and I will definitely be celebrating!
Link on the photo below for the whole set of photos that I took that day. All proceeds go to the American Cancer Society.
Thank you for stopping by --- Please please please leave a comment if you can. Thanks for thinking of me and supporting me through this journey. Remember to celebrate life everyday.....
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