In the 2009 season Steve & I took a trip with Dr Marc Read and his wife Eileen and stayed with Harry in Jackson Hole. It was great because we got to see and spend some time with Suzy Kneeland and her brother Drew and friends. I truly love that area, the mountains and wildlife are amazing. I remember the morning right after breakfast watching a mother moose walk right through the front lawn. The snow was glorious, we took a day trip to Grand Targhee with the crew and got the full affect of enjoying the view of the Grand Tetons. There is an easy trail down from the top of the high speed quad leading you to these trails respectfully named the Good - the Bad - and the Ugly. The trails have meaning to me as I love to ski the steep and gnarly stuff whenever I can. I remember when I first visited Targhee and having my photo by the Ugly sign. It was a VERY tough trail to ski for me back then... :) But this time I skied it with strength and ease.... and with my sweetheart who has coached me to be to strive and be the best I can be.
All great memories, with my sweetie and our great friends we meet where ever we go. So now, that I am "skiing" the steep stuff -- below is my current interpretation of what I am going through...
Photo below: Schuyler - J5 race at Willard Mountain 3/2010
So... getting on to the real meaning of my post --- today was a GOOD day! We went to the doctor for the check up after getting the PET scan yesterday to hear the great news that there is only minimal evidence of cancer in my body. The spleen is back to normal size, blood count is down below 11 (which isn't so good - but ok) --- but this is such great news! The notes from the doctor interpreting the scan was that I am showing TREMENDOUS response to chemotherapy and making great progress. I am strong. I am running. My training is still strong and Chicago is 24 days away! Laura is making our costumes ---- Wonder Woman will be wearing a red lycra running singlet with WW monogram & a 12 inch circle skirt and a little red cape! BatGirl will be in all black singlet & skirt with monogram and ears with the cape (of course). We have our tickets, hotel and can't wait to see Judy & the Fearless Foursome from Boston! Chicago Here We Come!
As of last week, my eyes are all swollen, feels like conjunctivitis with swollen eyelids and sty in each eye. It isn't conjunctivitis (just a reaction). They hurt and water up to the point where I can't focus (the computer HURTS! Which is a BAD thing!). Then this week I broke out in hives all over my body. Benedryl and more steroids is the help on the way --- but in the meantime I am not a happy camper. And exhausted (which may be some of the cause here too). In addition my fingers are feeling that tingling feeling mentioned as a side effect (it hasn't effected anything except perhaps my typing. :)) The plan is to get more sleep.
OK - yesterday was a bad day - so bad I started to get ugly (and no I don't have my period). I headed to the hospital to get my PET scan and just really didn't start in a great mood. It was 2 days in a row that we missed the bus and Schuyler honestly hasn't been easy to get to bed or get out of bed and it is all just getting to me. My patience on everything has been wearing thin. Lots going on at work and pressure has been building --- at the same time I have only been running 2-3 miles a day this week and it hasn't actually been enough to keep me sane. Longer is better, believe it! The tech came out and walked me to the room (left Steve behind -she said there wasn't enough room, although the last time he was allowed in for the first part of the testing). Then she gave me a hard time for using my iPad and wanted me to stay "quiet" so there wouldn't be any muscle showing on the testing. The signs in the little closed space were glaring and shared CAUTION, BEWARE, RADIOACTIVE (all unsettling images) and then after she "yelled" at me the second time for sneaking my iPad out - she asked if I wanted music... and then turned on this top 40 crap. Talk about NOT relaxing music! I was pretty pissed at her so the next time she came in I told her to turn off the music. You could say I was a little moody, because she had me in tears. The last time I was here they left me in that room in the scanner and didn't hear me when I called (I let her know that too -- and she took offense right from the beginning). I guess this is hard to explain to give you the full effect, but the last piece was when we asked for the CD of the imaging and she asked us to wait. After 10 minutes I was streaming down tears and wanted to RUN away from that place.
Needless to say we left before getting the disc. My patience was wearing thin and at that time my eyes were swollen twice the size from crying so much.
Then we went to Post Office to send some clothes back that I packed after buying them online and I didn't like them - they are all too big! :( So we got there and the guy says that it is going to cost me $10. Twice as much as it would have cost if I went with the home pick up UPS option. I was ready to walk and he offered me an envelope could pack and it would be $4. So I emptied the box repacked it and went to the other lady. She weighed it and asked for $6. I told her that I swore he said $3.95 and she snapped "NOT IF IT IS IN A PRIORITY ENVELOPE!" --- I snapped back "YOU DON"T NEED TO BE NASTY!" (my negotiation skills were not kicking in so well today) and gave the cash and walked out crying again! ARGH ---- Poor Steve..... he had to put up with my inpatience all morning and just gave me a hug.
I totally needed to go home... I vented.... I got better.... and then when I got the great news today --- it's all good and I feel great once again. They say it can be irritation and moods caused by the steroids (Prednisone).... so watch out! :)
So that is my update --- I have been on a high from all the amazing comments on my video posted below. It was truly an amazing experience. I am on a high now from the results of the PET scan.
Next week I start treatment again on Monday - - meet the new doctor that is going to be handling the Methatrexate portion of my treatment at Baystate on 9/23. Hoping to have a great weekend on the boat, get in a couple long runs, and maybe a little golf, get my brakes fixed, work on the rock and get ready for Schuyler's birthday. :)
Sharing a couple of my latest favorite quotes below:
"I love Tuesdays, almost as much as Wednesdays, better than Mondays, not as good as Thursdays, thinking you can't beat Fridays --- until you hit the WEEKEND! :) Enjoy each and every day!"
-- Nancy Cook, on Life!
'If you have a task to perform and are vitally interested in it, excited and challenged by it, then you will exert maximum energy. But in the excitement, the pain of fatigue dissipates, and the exuberance of what you hope to achieve overcomes the weariness.' - Unknown
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